With the weather being predicted as an oncoming Blizzard last week, Tom decided to postpone the trip to Ann Arbor. We are now schedule to meet Dr. Worden on January 6. This appointment is at 1:00 so we should be able to manage the drive to and from in one day. We also decided to cancel all of Tom's other appointments and begin again in the new year. January may be a very busy month for my hubby. So for now we are concentrating on getting ready for the holidays. We still have major shopping to do and the kids only have 1 week left of school. This is going to be very tricky as our time becomes more limited.
The kids are excited about their upcoming parties at school and the thought of being off for 2 weeks! They have already been sledding most of last week and loving the cups of hot chocolate they are able to consume when they come back inside. Ready or not, I believe winter is here for a while.
My presentation on The Anatomy of Hope is behind me and I am glad to say that I did pretty good considering that I forgot my notes at home. Luckily I had my USB drive in my purse and was still able to present. Those of you who know me well should not be surprised that I forgot it (I have been known to leave suitcases behind :) I have one more class and then am looking forward to enjoying the holidays with our families.
I would like to share one other thought. Our church is studying the Psalms, you know I can't resist going to hear them! A few weeks ago our pastor was talking about Hope. He stated that it is very important where we go for hope. I agreed at the time, but as the days past those words really hit my heart. As in my presentation about Hope and the importance of having it....it is just as important of What you Hope and in Who. It truly does matter. It's almost like the commercial, "What's in your wallet?"
Psalms 25:15-19 "My eyes are ever looking to the Lord for help, for he alone can rescue me. Come, Lord, and show me your mercy, for I am helpless, overwhelmed, in deep distress; my problems go from bad to worse. Oh, save me from them all! Se my sorrows; feel my pain, forgive my sins."
Monday, December 14, 2009
Tuesday, November 24, 2009
Buried in Paperwork
We are 2 days away from Thanksgiving. I want to wish everyone a wonderful and safe day. We will not be traveling very far, and I'm thankful for that. The Tri-mester is winding down this week for our children. Our eldest has Exams, though he missed the first day of test as he was home sick. The kids are looking forward to the up coming holidays.
I wanted take a moment to say thanks to so many of you that were able to attend my surprise party. It was so great to see you all. I know that for some people it had been a number of years since we have seen each other. I told a few people that I believe I talked with everyone, but had a conversation with no one as it was a busy night trying to catch everyone. However, I was so glad that I got to see people who've touched my life. Looking back, it was a great time!
Last weekend we went to Ohio for the bashing of U of M. The Ohio group was not too hard on all of us Michigan travelers this year. Thanks to our Ohio friends for putting up with so much Blue in their home! I know we all had such a great time getting together. To end the 2009 year, Tom has been ramping up his schedule again. I'm not sure how he does it, but he says that he is ready and able for this grueling schedule.
Before we left for Ohio last week we met with Dr. Collins, Endocrinologist. She was very interested in Tom's history and had us tell her (in our words) what has been going on since 2007. It was amazing to hear that she studied under Dr. Teknos and Dr. Worden at the U of M before graduated in the summer of 2007. What a small world. We ended the consultation with reassurance that we are doing the right thing by going to see Dr. Worden at the U of M. She also said that Tom was a more complicated case than she had first thought. She wanted to do some research and gather more of his results from past test before she could see where (if at all) she could assist Tom. We have an appointment to see her in January of 2010. This past week I've made phone calls to make sure that the doctor has all the papers and the test results and/or which ones we will need to bring . There is so much paperwork to see another doctor, it's like starting again from the beginning of a book, except that the book is 2 years old and more chapters are added.
Meeting with these doctors has once again reminded me of how fragile life truly is. Our family has the gift of time; not only to make good memories for the kids, but also to be able to practise living in love. Each mile marker that happens; birthdays, holidays, etc. I thank God that Tom is here to be a part of. Love is our greatest guide.
"Most important of all, continue to show deep love for each other, for love makes up for many of your faults." 1 Peter 4:8
I wanted take a moment to say thanks to so many of you that were able to attend my surprise party. It was so great to see you all. I know that for some people it had been a number of years since we have seen each other. I told a few people that I believe I talked with everyone, but had a conversation with no one as it was a busy night trying to catch everyone. However, I was so glad that I got to see people who've touched my life. Looking back, it was a great time!
Last weekend we went to Ohio for the bashing of U of M. The Ohio group was not too hard on all of us Michigan travelers this year. Thanks to our Ohio friends for putting up with so much Blue in their home! I know we all had such a great time getting together. To end the 2009 year, Tom has been ramping up his schedule again. I'm not sure how he does it, but he says that he is ready and able for this grueling schedule.
Before we left for Ohio last week we met with Dr. Collins, Endocrinologist. She was very interested in Tom's history and had us tell her (in our words) what has been going on since 2007. It was amazing to hear that she studied under Dr. Teknos and Dr. Worden at the U of M before graduated in the summer of 2007. What a small world. We ended the consultation with reassurance that we are doing the right thing by going to see Dr. Worden at the U of M. She also said that Tom was a more complicated case than she had first thought. She wanted to do some research and gather more of his results from past test before she could see where (if at all) she could assist Tom. We have an appointment to see her in January of 2010. This past week I've made phone calls to make sure that the doctor has all the papers and the test results and/or which ones we will need to bring . There is so much paperwork to see another doctor, it's like starting again from the beginning of a book, except that the book is 2 years old and more chapters are added.
Meeting with these doctors has once again reminded me of how fragile life truly is. Our family has the gift of time; not only to make good memories for the kids, but also to be able to practise living in love. Each mile marker that happens; birthdays, holidays, etc. I thank God that Tom is here to be a part of. Love is our greatest guide.
"Most important of all, continue to show deep love for each other, for love makes up for many of your faults." 1 Peter 4:8
Wednesday, November 11, 2009
Ann Arbor
The kids are finishing their first Tri-mester at school. It will be interesting to see if having the Parental Portal to check their status and current grade has been helpful. We parents are still learning how to use this tool. The kids are liking the ads help them decide what to mark on their "Wish lists" in anticipation of Christmas gifts. The boys have definitely gone to the higher priced toys.
Tom's schedule continues to be busy. Last weekend along with his regular work schedule, he taught classes at the Wayland EMS Disaster Blitz. The kids were able to participate in the drills for Mass Causality. Their wounds looked totally real and they had a blast! I was able to be outside and to enjoy the Indian Summer last weekend. I loved every minute of the sun and warmer temp.
This week we received a call from Dr. Worden's office. We will be visiting the U of M on Wednesday, December 9. It will be an interesting step to have yet another specialist working on Tom's disease. I believe that we are taking a step in the right direction. Again, I am amazed at Tom's primary doctor who pushed the issue, helping us get what we need for Tom's medical care.
Katie watched a show this week and was "singing" to me about what she heard. She recited this verse by heart, and I was touched by her words. To come out of the mouth of a babe was awesome! "Keep on asking and you will keep on getting; keep on looking and you will keep finding; knock and the door will be opened." Luke 11:9
Tom's schedule continues to be busy. Last weekend along with his regular work schedule, he taught classes at the Wayland EMS Disaster Blitz. The kids were able to participate in the drills for Mass Causality. Their wounds looked totally real and they had a blast! I was able to be outside and to enjoy the Indian Summer last weekend. I loved every minute of the sun and warmer temp.
This week we received a call from Dr. Worden's office. We will be visiting the U of M on Wednesday, December 9. It will be an interesting step to have yet another specialist working on Tom's disease. I believe that we are taking a step in the right direction. Again, I am amazed at Tom's primary doctor who pushed the issue, helping us get what we need for Tom's medical care.
Katie watched a show this week and was "singing" to me about what she heard. She recited this verse by heart, and I was touched by her words. To come out of the mouth of a babe was awesome! "Keep on asking and you will keep on getting; keep on looking and you will keep finding; knock and the door will be opened." Luke 11:9
Wednesday, November 4, 2009
Oncology
The time change is effecting some of our family members. I always have a hard time with this change. However, I am glad the kids can walk to school in the light. They do seem a little sluggish but I am not sure it is all due to the time change and not a little to do with the sugar withdraws!
Tom had his blood work done on Friday. His primary doctor called him on Tuesday to give him the new count which has shot up another 120 counts and now is up to 663. During their conversation the doctor mentioned about Tom going to the U of M to see Dr. Worden. This brought another conversation between Dr. and Insurance company asking why Tom was denied going to the U of M. The Case Manager called me asking me to give a little more detail about about the doctor we see at the U of M. She explained that the insurance company thought it was agreed that we were going to the Cancer Center in Detroit. A few phone calls later and we have an approval to see the Oncologist at U of M. Dr. Worden will oversee Tom's treatment working with our current Oncologist at the Lemmon Holton Cancer Pavilion. It feels good to make some forward progress.
Thursday Tom will see his primary doctor and hopefully will have the UofM referral before he leaves that office. Then on November 19 he will be having a consult with Dr. Campbell here in West Michigan. On the 20th he will see an Endocrinologist for a consult here in GR. He is continuing his PT every Friday and that fills up his calendar for the month!
Thanks to all who have continued to keep our family in your prayers. I believe they have kept us in forward motion. The power of prayer along with a positive attitude is a remarkable thing!
James 5:7 -8"So give yourselves humbly to God. Resist the devil and he will flee from you. And when you draw close to God, God will draw close to you."
Tom had his blood work done on Friday. His primary doctor called him on Tuesday to give him the new count which has shot up another 120 counts and now is up to 663. During their conversation the doctor mentioned about Tom going to the U of M to see Dr. Worden. This brought another conversation between Dr. and Insurance company asking why Tom was denied going to the U of M. The Case Manager called me asking me to give a little more detail about about the doctor we see at the U of M. She explained that the insurance company thought it was agreed that we were going to the Cancer Center in Detroit. A few phone calls later and we have an approval to see the Oncologist at U of M. Dr. Worden will oversee Tom's treatment working with our current Oncologist at the Lemmon Holton Cancer Pavilion. It feels good to make some forward progress.
Thursday Tom will see his primary doctor and hopefully will have the UofM referral before he leaves that office. Then on November 19 he will be having a consult with Dr. Campbell here in West Michigan. On the 20th he will see an Endocrinologist for a consult here in GR. He is continuing his PT every Friday and that fills up his calendar for the month!
Thanks to all who have continued to keep our family in your prayers. I believe they have kept us in forward motion. The power of prayer along with a positive attitude is a remarkable thing!
James 5:7 -8"So give yourselves humbly to God. Resist the devil and he will flee from you. And when you draw close to God, God will draw close to you."
Sunday, October 25, 2009
Communication
We had Parent Teacher conferences last week and once again discussed with the teacher our children's strength and weaknesses. Communication is key and I have to say that I appreciate the Parental Portal that lets us know what our boys grades are and what classes need a little more attention. It has been a great tool this fall.
Tom is trying to visit the Lymphedema specialist for the physical therapy once again. He will be going every Friday and see how that fits into his schedule. I believe that Tom is appreciating his slower schedule this month. Tom was the first of the boys to come down with the flu/cold. He was able to rest about 4 days before going back to work. At one time he told me it felt like he'd been hit by a bus. I know that his immunity continues to be low and that it does not take as much to slow Tom down. I also know that this is frustrating for Tom as he is not one to be down for a long period of time.
I had a conversation with the nurse at the cancer center. We discussed the disconnect at their office. I believe that the conversation went well and I hope that we have cleared up any issues. We will need to make sure that going forward everything is clear with this office. However, time will tell if we are all on the same page. Tom will be getting poked next week to see where all his levels are at. I am hoping that they are stable and there is not another big jump in Calcitonin levels. Tom will need to make an appointment one week from his blood work date to see Dr. Campbell and get the results. Communication is the key in working with the different offices.
I am doing a study and presentation this fall on Hope. It comes from the book called The Anatomy of Hope. It is a great book that a friend gave me to read about 2 years ago. Many of the writings stuck with me throughout these years and I thought it was appropriate for my Holistic Healthy class. It brings to light again the mysterious affect that Hope (and in my opinion faith) has on a person's outlook when encountering a serious disease. It also brings back to mind readings of hope and faith from the Bible. I have read this before and I love what Jeremiah wrote in Lamentations 3:21-23
"Yet there is one ray of hope: his compassion never ends. It is only the Lord's mercies that have kept us from complete destruction. Great is his faithfulness; his loving kindness begins afresh each day."
I continue to communicate with my God daily. He is my Hope. Amen
Tom is trying to visit the Lymphedema specialist for the physical therapy once again. He will be going every Friday and see how that fits into his schedule. I believe that Tom is appreciating his slower schedule this month. Tom was the first of the boys to come down with the flu/cold. He was able to rest about 4 days before going back to work. At one time he told me it felt like he'd been hit by a bus. I know that his immunity continues to be low and that it does not take as much to slow Tom down. I also know that this is frustrating for Tom as he is not one to be down for a long period of time.
I had a conversation with the nurse at the cancer center. We discussed the disconnect at their office. I believe that the conversation went well and I hope that we have cleared up any issues. We will need to make sure that going forward everything is clear with this office. However, time will tell if we are all on the same page. Tom will be getting poked next week to see where all his levels are at. I am hoping that they are stable and there is not another big jump in Calcitonin levels. Tom will need to make an appointment one week from his blood work date to see Dr. Campbell and get the results. Communication is the key in working with the different offices.
I am doing a study and presentation this fall on Hope. It comes from the book called The Anatomy of Hope. It is a great book that a friend gave me to read about 2 years ago. Many of the writings stuck with me throughout these years and I thought it was appropriate for my Holistic Healthy class. It brings to light again the mysterious affect that Hope (and in my opinion faith) has on a person's outlook when encountering a serious disease. It also brings back to mind readings of hope and faith from the Bible. I have read this before and I love what Jeremiah wrote in Lamentations 3:21-23
"Yet there is one ray of hope: his compassion never ends. It is only the Lord's mercies that have kept us from complete destruction. Great is his faithfulness; his loving kindness begins afresh each day."
I continue to communicate with my God daily. He is my Hope. Amen
Sunday, October 11, 2009
The Next Step
It amazes me how fast time flies. Kyle and I were having the generational talk about time getting faster as we get older. I warned him that when he looks back at the High School years some day it will seem like a short span in his life. Cody's football team has not won a game this year, but he has made some great tackles and he is enjoying it! Katie loves the Michigan History study that her class is doing. At this point she is talking about wanting to be a teacher. I love her ambition!
For the month of September, Tom is at a slower pace. It has been nice to have him at home in the evenings. He is taking a much needed breather in his hectic life. He told me yesterday that he thinks the newest medication is working with his swelling, and I am grateful for this small relief. Though he still deals with daily aches and pains, he keeps smiling and telling me that he is just glad to be here. As we have just passed the 2 year anniversary of his surgery, I have counted this time as a precious gift.
I had a conversation with Tom's primary doctors office and was told that our insurance has denied Tom seeing the U of M Oncologist. Since the University is "Out of Network" they would like Tom to see another Oncologist at a Thyroid Clinic in Detroit. Tom has decided that we will stay with his current Oncologist on the West side of the state. Since this is the case, I have chosen to have a much needed conversation with someone in the Oncologist office as to our future relationship. I am just not sure who is the best person to talk to. However, it is time for Tom to get his blood count again and that opens the door the lack of communication with this office. This will not be easy and I hope that we can work together moving forward.
Please continue to pray for Tom and his struggles. Also that the conversation will go smoothly and stay positive with whomever I speak with at the Oncologist Office. Lastly that we do not get discouraged in the path that we have been set upon.
For the month of September, Tom is at a slower pace. It has been nice to have him at home in the evenings. He is taking a much needed breather in his hectic life. He told me yesterday that he thinks the newest medication is working with his swelling, and I am grateful for this small relief. Though he still deals with daily aches and pains, he keeps smiling and telling me that he is just glad to be here. As we have just passed the 2 year anniversary of his surgery, I have counted this time as a precious gift.
I had a conversation with Tom's primary doctors office and was told that our insurance has denied Tom seeing the U of M Oncologist. Since the University is "Out of Network" they would like Tom to see another Oncologist at a Thyroid Clinic in Detroit. Tom has decided that we will stay with his current Oncologist on the West side of the state. Since this is the case, I have chosen to have a much needed conversation with someone in the Oncologist office as to our future relationship. I am just not sure who is the best person to talk to. However, it is time for Tom to get his blood count again and that opens the door the lack of communication with this office. This will not be easy and I hope that we can work together moving forward.
Please continue to pray for Tom and his struggles. Also that the conversation will go smoothly and stay positive with whomever I speak with at the Oncologist Office. Lastly that we do not get discouraged in the path that we have been set upon.
Tuesday, September 22, 2009
PET Results
Today was Katie's picture day and we had fun last night picking out an outfit for her day. It was a great opportunity to go through her clothes and get rid of the things that are too small. Tom and I were able to see Kyle in the band last Friday during half-time. I never saw that child step so lightly before! Cody will have his first football game tomorrow and he is totally into it!!! I believe that they have him in offense, defense, and special teams so he will be on the field more than off.
I called Tom's primary doctor today asking about the PET Scan. Their office manager is on maternity leave so things are running a little differently there. Dr. Divic called me back and said the scan shows normal in the neck and chest. He is still perplexed about the Calcitonin numbers. He said that we should be back to monitoring the blood and waiting for another 4 to 6 months to see what happens. He inquired about seeing the Oncologist, either Dr. Campbell or going to the U of M. I explained that at this point we do not have any appointments as we are waiting for our insurance company to approve switching out of network doctor in Ann Arbor. It was funny that he had to ask me what I talked about to his Office Manager before she left. She is truly missed by more than just her staff.
We turn back to daily focusing on "life" again for a while. I believe that both Tom and I felt relief when we got the news. However, we are still all keeping that number in the back of our minds. Life is so fragile and we all need each other to hold each other up and accountable for our actions while we live. We are not given the understanding today to know why things happen and what purpose this bears unto our lives but I believe this verse from Ecclesiastes 7:14
"Enjoy prosperity whenever you can, and when hard times strike, realize that God gives one as well as the other - so that everyone will realize that nothing is certain in this life."
I called Tom's primary doctor today asking about the PET Scan. Their office manager is on maternity leave so things are running a little differently there. Dr. Divic called me back and said the scan shows normal in the neck and chest. He is still perplexed about the Calcitonin numbers. He said that we should be back to monitoring the blood and waiting for another 4 to 6 months to see what happens. He inquired about seeing the Oncologist, either Dr. Campbell or going to the U of M. I explained that at this point we do not have any appointments as we are waiting for our insurance company to approve switching out of network doctor in Ann Arbor. It was funny that he had to ask me what I talked about to his Office Manager before she left. She is truly missed by more than just her staff.
We turn back to daily focusing on "life" again for a while. I believe that both Tom and I felt relief when we got the news. However, we are still all keeping that number in the back of our minds. Life is so fragile and we all need each other to hold each other up and accountable for our actions while we live. We are not given the understanding today to know why things happen and what purpose this bears unto our lives but I believe this verse from Ecclesiastes 7:14
"Enjoy prosperity whenever you can, and when hard times strike, realize that God gives one as well as the other - so that everyone will realize that nothing is certain in this life."
Tuesday, September 8, 2009
What happened?
The first day of school is officially done. The kids all survived, and the boys found their classes with little incident. Ready or not, we are getting into a routine. However, miss Katie will be exhausted tonight as she awoke at 5:00 am and was too excited to fall back to sleep!
Tom has his PT 3 days a week starting Wednesday of this week. He will hopefully get into a better schedule because they have his appointment times all over the board this week. With Tom's schedule it is hard for him to make early morning and middle of the day times. It would be nice if this one thing would work smoothly.
Today I received a call from the Grievance Coordinator. He stated that Tom's PET Scan has been approved and that the Oncologist would be receiving the Authorization number soon to schedule it. He could not tell me what had been done to change this to an Approval. However, I did get a history lesson on who is making this decision. In the past it was our insurance company who approved them. It changed hands to an outside approval company in November of 2008. The criteria is different for each company. The PET scan criteria had not been met since the change of companies. There is no explanation as to why they approved it in December and it sounds like this is the last time that it will be without the Criteria being met. Tonight I had a few minutes to talk with Tom about the authorization and he said that he does have a PET scheduled for Wednesday, September 16 @ 9:00.
I have a light heart tonight as I thank God. I had so many verses pop into my head that I could not write them all down. I will share this one:
"Bless the Lord who is my immovable Rock. He gives me strength and skill in battle. He is always kind and loving to me; he is my fortress, my tower of strength and safety, my deliverer. He stands before me as a shield." Psalms 144:1-2
Tom has his PT 3 days a week starting Wednesday of this week. He will hopefully get into a better schedule because they have his appointment times all over the board this week. With Tom's schedule it is hard for him to make early morning and middle of the day times. It would be nice if this one thing would work smoothly.
Today I received a call from the Grievance Coordinator. He stated that Tom's PET Scan has been approved and that the Oncologist would be receiving the Authorization number soon to schedule it. He could not tell me what had been done to change this to an Approval. However, I did get a history lesson on who is making this decision. In the past it was our insurance company who approved them. It changed hands to an outside approval company in November of 2008. The criteria is different for each company. The PET scan criteria had not been met since the change of companies. There is no explanation as to why they approved it in December and it sounds like this is the last time that it will be without the Criteria being met. Tonight I had a few minutes to talk with Tom about the authorization and he said that he does have a PET scheduled for Wednesday, September 16 @ 9:00.
I have a light heart tonight as I thank God. I had so many verses pop into my head that I could not write them all down. I will share this one:
"Bless the Lord who is my immovable Rock. He gives me strength and skill in battle. He is always kind and loving to me; he is my fortress, my tower of strength and safety, my deliverer. He stands before me as a shield." Psalms 144:1-2
Sunday, September 6, 2009
Decision Time
We are at the last stretch of summer vacation. The youngest is the only one excited to be going back to school. Since the boys are starting new schools I wonder if they have a little apprehension about what their days ahead will look like. We enjoyed watching the WMU vs UofM yesterday with family at Swan Lake. Our family was all in WMU but it was good to see Michigan having a much better start to the football season. It was a beautiful day for just being outdoors and enjoying company.
Last Thursday we met with Tom's Oncologist. The morning started with receiving news from his PCP that Tom's calcitonin levels jumped to 536. If you recall in July his last count was 395 so in a month the increase was 141. This was not encouraging to hear. I decided to bring along the 300 plus page report that I had been going over to to discuss the Denial and Appeals with his doctor to see how we could get this Approved or if we need to concentrate on a different type of scan for now. At the beginning of our consultation Tom and I were shocked to hear the doctor proclaim that once again his numbers were jumping to indicate the cancer is definitely growing and that he recommended a PET scan as our next step. I replied that I am sure he was aware that Tom had been denied the PET scans twice before. We were shocked and disappointed that Tom's doctor did not appear to have any knowledge of the Denials & Grievance's. His response was that he would make a phone call to the insurance company and get this through. We waited out in the lobby to hear that the Oncologist did get through but nothing was resolved. We were also assured that they would get it resolved on Friday and they would call us. In short we felt that we were shuffled through his office. Friday came and went with no phone call.
That evening Tom and I had a long conversation. This is his life that we are dealing with and we are not satisfied with the current level of care that he is receiving. We decided to follow the advise of his Surgeon 2 years ago and move his care back to the University of Michigan Hospital. Tom discussed this with his Primary Physician on Friday who agreed that he needs to return to the U of M where they have a team of specialists who can deal with this rare cancer. His office has started the paperwork. We do not anticipate any prob elms with our insurance company switching our Oncologist.
While we feel that this is the right decision, it will not be an easy one. This will mean Tom will have to start making trips back & forth to Ann Arbor at a time when school is starting and we are in the midst of Band, Football, Cheer leading, and I have now returned to working full time. Maybe this will force Tom to slow down and not work so many hours. Thanks for continuing this journey with our family & your support. We can't do this alone.
Last Thursday we met with Tom's Oncologist. The morning started with receiving news from his PCP that Tom's calcitonin levels jumped to 536. If you recall in July his last count was 395 so in a month the increase was 141. This was not encouraging to hear. I decided to bring along the 300 plus page report that I had been going over to to discuss the Denial and Appeals with his doctor to see how we could get this Approved or if we need to concentrate on a different type of scan for now. At the beginning of our consultation Tom and I were shocked to hear the doctor proclaim that once again his numbers were jumping to indicate the cancer is definitely growing and that he recommended a PET scan as our next step. I replied that I am sure he was aware that Tom had been denied the PET scans twice before. We were shocked and disappointed that Tom's doctor did not appear to have any knowledge of the Denials & Grievance's. His response was that he would make a phone call to the insurance company and get this through. We waited out in the lobby to hear that the Oncologist did get through but nothing was resolved. We were also assured that they would get it resolved on Friday and they would call us. In short we felt that we were shuffled through his office. Friday came and went with no phone call.
That evening Tom and I had a long conversation. This is his life that we are dealing with and we are not satisfied with the current level of care that he is receiving. We decided to follow the advise of his Surgeon 2 years ago and move his care back to the University of Michigan Hospital. Tom discussed this with his Primary Physician on Friday who agreed that he needs to return to the U of M where they have a team of specialists who can deal with this rare cancer. His office has started the paperwork. We do not anticipate any prob elms with our insurance company switching our Oncologist.
While we feel that this is the right decision, it will not be an easy one. This will mean Tom will have to start making trips back & forth to Ann Arbor at a time when school is starting and we are in the midst of Band, Football, Cheer leading, and I have now returned to working full time. Maybe this will force Tom to slow down and not work so many hours. Thanks for continuing this journey with our family & your support. We can't do this alone.
Sunday, August 30, 2009
Let Love
We are down to the last full week of summer break. We only have a few supplies to buy for Kyle and then the kids will be ready for school. On Tuesday Cody will get oriented with the Middle School and meet this years teachers. Katie will be at the same school, but they have made major improvements and she is excited to see what they have done. Kyle is going into High School and just received his schedule during his orientation; he hopes that he does not get lost.
Tom continues with his health care. Last Thursday Tom and I were able to meet one of the Lymph edema Therapists. She went over Tom's case and explained in detail how the Lymph nodes work with the body. I once again am amazed at how the human body is made up and works together to keep us healthy. She did a demonstration of how to manually drain the lymph nodes, which is about a 10 minute process that he will need to do everyday. Tom will wear a compression bandage around his neck and a "stocking" with a compression bandage on his right cheek each night while he sleeps. She also confirmed that this is a lifestyle that Tom will practise for the rest of his life. Tom will start this Physical Therapy the week after Labor Day.
I also had a call from the Grievance Coordinator at the insurance company. Tom's PET scan has been denied once again. I asked for the Committee Appeals Meeting transcripts and told them that we will take this Appeal to the next level. I have received the hundreds of pages of notes and plan to bring them to Tom's Oncology appointment this Thursday to go over the necessary steps.
Unfortunately it is taking a little longer this time around for the Calcitonin levels to be reported from the lab. It should be reported in the next few days and I am anxious to know what they are. Tom is feeling much better since he received his new Thyroid medicine. I can tell that they are helping with his energy level. Some days I feel that I have my healthy husband back.
This week has been a blow to Tom and I. As we try to comprehend the steps to take and what this means to Tom's care, we are learning how to handle each other's reactions to this news. I have to admit that tension was a little high here for a few days. It is another reminder that there is no "quick fix" and that this disease is life changing. This brings back the meaning of why we wanted to share life with each other and the love that brought us and keeps us together. Life is hard to handle and love smooths our paths. I will conclude with a verse that is so embedded into my being and I hope that you feel it too:
"Love is very patient and kind, never jealous or envious, never boastful or proud, never haughty or selfish or rude. Love does not demand its own way. It is not irritable or touchy. It does not hold grudges and will hardly even notice when others do it wrong. It is never glad about injustice, but rejoices whenever truth wins out." 1 Corinthians 13:4-6
Tom continues with his health care. Last Thursday Tom and I were able to meet one of the Lymph edema Therapists. She went over Tom's case and explained in detail how the Lymph nodes work with the body. I once again am amazed at how the human body is made up and works together to keep us healthy. She did a demonstration of how to manually drain the lymph nodes, which is about a 10 minute process that he will need to do everyday. Tom will wear a compression bandage around his neck and a "stocking" with a compression bandage on his right cheek each night while he sleeps. She also confirmed that this is a lifestyle that Tom will practise for the rest of his life. Tom will start this Physical Therapy the week after Labor Day.
I also had a call from the Grievance Coordinator at the insurance company. Tom's PET scan has been denied once again. I asked for the Committee Appeals Meeting transcripts and told them that we will take this Appeal to the next level. I have received the hundreds of pages of notes and plan to bring them to Tom's Oncology appointment this Thursday to go over the necessary steps.
Unfortunately it is taking a little longer this time around for the Calcitonin levels to be reported from the lab. It should be reported in the next few days and I am anxious to know what they are. Tom is feeling much better since he received his new Thyroid medicine. I can tell that they are helping with his energy level. Some days I feel that I have my healthy husband back.
This week has been a blow to Tom and I. As we try to comprehend the steps to take and what this means to Tom's care, we are learning how to handle each other's reactions to this news. I have to admit that tension was a little high here for a few days. It is another reminder that there is no "quick fix" and that this disease is life changing. This brings back the meaning of why we wanted to share life with each other and the love that brought us and keeps us together. Life is hard to handle and love smooths our paths. I will conclude with a verse that is so embedded into my being and I hope that you feel it too:
"Love is very patient and kind, never jealous or envious, never boastful or proud, never haughty or selfish or rude. Love does not demand its own way. It is not irritable or touchy. It does not hold grudges and will hardly even notice when others do it wrong. It is never glad about injustice, but rejoices whenever truth wins out." 1 Corinthians 13:4-6
Sunday, August 23, 2009
Fragile Life
We are definitely into football season once again at the Andrew's household. Cody had his first week of football practice and he was all smiles on Thursday when he could "make contact". Kyle will be on the field this Friday night during the first Wayland football game half-time band performance. The game is Wayland Wildcats vs. Jenison Wildcats. For those who do not know, I grew up in Jenison. When asked by Katie who I will be cheering for, I told her the Wildcats of course! She told me that if I cheer during Jenison's good fortune she will have to tickle me :)
There was another round of phone calls during the week. The Grievance Coordinator called to confirm information about Tom's case & to ask further questions. I am told that on Wednesday he will present the case to the committee and that our Case Manager will let me know the outcome. Tom had his blood work done last week and if the results can be forwarded by the time of presentation, it will also be included. On Friday, Tom's primary office called and said that his Thyroid levels were a little low. He will need to get a small tweak of his medicine. His results for the oxygen test were also completed. His oxygen levels are considered normal.
As we patiently await for the results of yet another round of insurance approvals, calcitonin levels, and x-ray readings; we continue with life. Today in church our pastor was talking about how fragile life is as there have been two young deaths in our community. This touched my heart and made me think about the many people who are asking "Why" Though that is a valid question, I believe that we sometime focus on the question when it could be a time of deepening our faith & letting God lead the way of His will. I will conclude with a verse our pastor shared:
Psalm 24:1-2 "The earth is the Lord's and everything in it, the world, and all who live in it; for he founded it upon the seas and established it upon the waters."
There was another round of phone calls during the week. The Grievance Coordinator called to confirm information about Tom's case & to ask further questions. I am told that on Wednesday he will present the case to the committee and that our Case Manager will let me know the outcome. Tom had his blood work done last week and if the results can be forwarded by the time of presentation, it will also be included. On Friday, Tom's primary office called and said that his Thyroid levels were a little low. He will need to get a small tweak of his medicine. His results for the oxygen test were also completed. His oxygen levels are considered normal.
As we patiently await for the results of yet another round of insurance approvals, calcitonin levels, and x-ray readings; we continue with life. Today in church our pastor was talking about how fragile life is as there have been two young deaths in our community. This touched my heart and made me think about the many people who are asking "Why" Though that is a valid question, I believe that we sometime focus on the question when it could be a time of deepening our faith & letting God lead the way of His will. I will conclude with a verse our pastor shared:
Psalm 24:1-2 "The earth is the Lord's and everything in it, the world, and all who live in it; for he founded it upon the seas and established it upon the waters."
Sunday, August 16, 2009
Busy Week w/No Results
We are well on our way to getting the kids ready for back to school. Kyle, Tom, & I went shopping together for Kyle's first year in High School. We had a successful day and everyone left feeling happy about the purchases. Kyle liked his clothes, Tom liked his style, & I liked the deals!
I received a phone call from Tom's Case Manager. Everything has been faxed to the Grievance Dept of our insurance company and his case will be reviewed on August 19 for his Pet Scan Approval. On Thursday I was trading phone calls with the Office Manager at Tom's primary office. I had to laugh when she called, Tom answered the phone, and she said, "Hi Tom, can I talk with Val." Apparently she knows that I am his official Health Advocate. That night Tom successfully completed his Pulse oximetry test. This time he left it on his hand all night. On Friday Tom saw a Lymphedema Specialist. Dr. Hodgson went over Tom's medical history and has determined that Tom needs to see a Therapist in his office. These sessions may include the manual lymphomic drainage, bandaging, and therapeutic exercises. He may be fitted with a compression garment to wear at night to prevent fluid buildup. Tom envisioned a hockey mask, like Jason from Friday the 13th. That will be something to wake up next to! I plan to accompany him to his PT as I will need to learn how to preform these procedures at home.
On Thursday, August 20th Tom heads back to Spectrum for more blood work and a chest x-ray. His next doctor visits are on September 3rd with his Oncologist and September 4 with his Primary. What a way to kick off the holiday weekend! Tom continues to work extra shifts at both hospitals but has assured me that he will slow down after Labor Day. Gee, what a coincidence, the start of College Football Season!
I was looking over Jeremiah once again and found a verse that spoke to me. Not sure if I shared this one before or not but it fits into our time of life. "For I know the plans I have for you, says the Lord. They are plans for good and not for evil, to give you a future and a hope. In those days when you pray, I will listen. You will find me when you seek me, if you look for me in earnest.: Jeremiah 29:11-13
I received a phone call from Tom's Case Manager. Everything has been faxed to the Grievance Dept of our insurance company and his case will be reviewed on August 19 for his Pet Scan Approval. On Thursday I was trading phone calls with the Office Manager at Tom's primary office. I had to laugh when she called, Tom answered the phone, and she said, "Hi Tom, can I talk with Val." Apparently she knows that I am his official Health Advocate. That night Tom successfully completed his Pulse oximetry test. This time he left it on his hand all night. On Friday Tom saw a Lymphedema Specialist. Dr. Hodgson went over Tom's medical history and has determined that Tom needs to see a Therapist in his office. These sessions may include the manual lymphomic drainage, bandaging, and therapeutic exercises. He may be fitted with a compression garment to wear at night to prevent fluid buildup. Tom envisioned a hockey mask, like Jason from Friday the 13th. That will be something to wake up next to! I plan to accompany him to his PT as I will need to learn how to preform these procedures at home.
On Thursday, August 20th Tom heads back to Spectrum for more blood work and a chest x-ray. His next doctor visits are on September 3rd with his Oncologist and September 4 with his Primary. What a way to kick off the holiday weekend! Tom continues to work extra shifts at both hospitals but has assured me that he will slow down after Labor Day. Gee, what a coincidence, the start of College Football Season!
I was looking over Jeremiah once again and found a verse that spoke to me. Not sure if I shared this one before or not but it fits into our time of life. "For I know the plans I have for you, says the Lord. They are plans for good and not for evil, to give you a future and a hope. In those days when you pray, I will listen. You will find me when you seek me, if you look for me in earnest.: Jeremiah 29:11-13
Sunday, August 9, 2009
Phone Tag
What a stormy, humid day we are experiencing. I am very grateful to have air conditioning today. All of our children's birthday parties are done for the year (we enjoyed spending time with family & friends) and the kids had a great time at all of them. For Cody's 13th Tom and the guys played Paint Ball. They all came back with smiles and many had a few war bruises too. Then it was off to Band camp for the week. Tom and Kyle returned yesterday from Camp at Fort Custer in Battle Creek. They both came home tanned and tired. I believe Tom was surprised at the walking he did last week. Was it comparable to the marching the kids did? They both seemed to have had a good experience.
I decided to not post last week as I was awaiting answers to my voice mails that I left at various offices. Hands down to Tom's primary office once again! The Office Manager was the only one to return my phone call. They have not had a status update on the PET Scan and she said that she would not be surprised if there was no determination until mid week next week. Tom also tried to do the oxygen test 1 1/2 weeks ago. There is a small machine that hooks a clamp to the tip of your finger and it monitors the levels that Tom is breathing in. Even though Tom taped it heavily to his finger he took it off sometime during the night. When he woke up the next morning he knew that he must have taken it off somehow in his sleep as it couldn't have just fallen off. They are now trying to reschedule getting the machine back to Tom so that he can retake it as they only recorded 2 hours. I do have to add that Tom's Case Manager was on vacation last week. I hope to hear from her no later than Tuesday to get some type of update.
I also appreciated getting advice from an acquaintance about the procedure of Insurance Companies and a few tips about getting results. Tom and I talked about how to go about fighting these denials and that I should be the one to handle these important steps. I do feel better prepared if there should be another denial. I also know that I have the backing of Tom's doctors and their assistance in anything that we need. I am so grateful for the prayer warriors that put forth our various needs before our God. I don't know how we can keep focused without their words of encouragement an knowing that we are not alone. Thank you a million time over!
This leads me to the passage about being persistent in prayer for the things we need. There is a story in Luke that says a friend pounds on a man's door at midnight asking for something to eat and the man does not want to help at this hour. The Bible says: "But I'll tell you this-though he won't do it as a friend, if you keep knocking long enough he will get up and give you everything you want-just because of your persistence. And so it is with prayer-keep on asking and you will keep on getting; keep on knocking and you will keep on finding, knock and the door will be opened. Everyone who asks, receive; all who seek, find; and the door is opened to everyone who knocks." Luke 11:8-10
This does not mean that our Father is unjust or sleepy but that we should be persistent in prayer. Praying aggressively for the doing of God's will & honor of God's name . Keep pounding on heaven's door till the Lord answers. Amen!
I decided to not post last week as I was awaiting answers to my voice mails that I left at various offices. Hands down to Tom's primary office once again! The Office Manager was the only one to return my phone call. They have not had a status update on the PET Scan and she said that she would not be surprised if there was no determination until mid week next week. Tom also tried to do the oxygen test 1 1/2 weeks ago. There is a small machine that hooks a clamp to the tip of your finger and it monitors the levels that Tom is breathing in. Even though Tom taped it heavily to his finger he took it off sometime during the night. When he woke up the next morning he knew that he must have taken it off somehow in his sleep as it couldn't have just fallen off. They are now trying to reschedule getting the machine back to Tom so that he can retake it as they only recorded 2 hours. I do have to add that Tom's Case Manager was on vacation last week. I hope to hear from her no later than Tuesday to get some type of update.
I also appreciated getting advice from an acquaintance about the procedure of Insurance Companies and a few tips about getting results. Tom and I talked about how to go about fighting these denials and that I should be the one to handle these important steps. I do feel better prepared if there should be another denial. I also know that I have the backing of Tom's doctors and their assistance in anything that we need. I am so grateful for the prayer warriors that put forth our various needs before our God. I don't know how we can keep focused without their words of encouragement an knowing that we are not alone. Thank you a million time over!
This leads me to the passage about being persistent in prayer for the things we need. There is a story in Luke that says a friend pounds on a man's door at midnight asking for something to eat and the man does not want to help at this hour. The Bible says: "But I'll tell you this-though he won't do it as a friend, if you keep knocking long enough he will get up and give you everything you want-just because of your persistence. And so it is with prayer-keep on asking and you will keep on getting; keep on knocking and you will keep on finding, knock and the door will be opened. Everyone who asks, receive; all who seek, find; and the door is opened to everyone who knocks." Luke 11:8-10
This does not mean that our Father is unjust or sleepy but that we should be persistent in prayer. Praying aggressively for the doing of God's will & honor of God's name . Keep pounding on heaven's door till the Lord answers. Amen!
Saturday, July 25, 2009
Sobering News
Summer is about half way through & we are trying to enjoy these days before the crazy schedules start again. Tom has been working many hours & my work days seem to fly by.
There have been 3 grievance letters to our insurance company to get Tom back into the test mode. We are back to waiting for the approval. Prayer warriors, this would be my top request at this point in time. Tom continues to have breathing issues & noticed more swelling in his face. This brought about the decision to call his primary doctor. On Friday he went over many things with his doctor. First of all I again have to say how impressed I am with Tom's doc. Tom said he felt a little lost without his Secretary with him to give that last oncologist visits, and such & that was the good news of the day. Doc gave Tom his perspective of Tom's disease:
He first said that every time he sees Tom he believes it is a miracle. He said that after seeing the scans he would not have thought Tom would be in his office today. The swelling that Tom has been having is because he does not have the lymph nodes to reduce the fluids that build up in Tom's face and neck. It pools up while he is laying down & takes most of the day for the swelling to reside. This has been causing his breathing problems, headaches, & lack of sleep which has lead to exhaustion, anxiety & depression. The doctor is going to send Tom to a specialist on August 14 to see if there is anything they can do to reduce his swelling. The doctor is also putting Tom on new/more medication to see if it will help with this. The doctor has ordered an overnight study to see if Tom's oxygen levels are dropping significantly at night. The doctor has also put in a request with the insurance company to see if Tom would qualify for a hospital bed at home. Tom will follow up with the doctor on September 5.
Tom talked about his day to day struggles. Tom was reminded that he doing incredibly well after such a major surgery. They discussed the fact that the cancer is still active and he is by no means cured. Tom needs to focus on what is important right now. The surgery bought him 5 years & if they can stay on top of the cancer he will continue to look at life 5 years at a time.
I told Tom that none of this is shocking to me. I stopped reading all the website information a year ago because it all confirmed this. It has been in the back of my mind for that past 2 years. I try very hard not to take a day for granted (though at times I have greatly failed). So hearing this was once again very sobering and I again thought about how fragile life is. Then verses come to mind. I will share this one:
Psalms 44:5
O God - my God! O my soul, why be so gloomy and discouraged? Trust in God! I shall again praise him for his wondrous help; he will make me smile again, for his is my God!
There have been 3 grievance letters to our insurance company to get Tom back into the test mode. We are back to waiting for the approval. Prayer warriors, this would be my top request at this point in time. Tom continues to have breathing issues & noticed more swelling in his face. This brought about the decision to call his primary doctor. On Friday he went over many things with his doctor. First of all I again have to say how impressed I am with Tom's doc. Tom said he felt a little lost without his Secretary with him to give that last oncologist visits, and such & that was the good news of the day. Doc gave Tom his perspective of Tom's disease:
He first said that every time he sees Tom he believes it is a miracle. He said that after seeing the scans he would not have thought Tom would be in his office today. The swelling that Tom has been having is because he does not have the lymph nodes to reduce the fluids that build up in Tom's face and neck. It pools up while he is laying down & takes most of the day for the swelling to reside. This has been causing his breathing problems, headaches, & lack of sleep which has lead to exhaustion, anxiety & depression. The doctor is going to send Tom to a specialist on August 14 to see if there is anything they can do to reduce his swelling. The doctor is also putting Tom on new/more medication to see if it will help with this. The doctor has ordered an overnight study to see if Tom's oxygen levels are dropping significantly at night. The doctor has also put in a request with the insurance company to see if Tom would qualify for a hospital bed at home. Tom will follow up with the doctor on September 5.
Tom talked about his day to day struggles. Tom was reminded that he doing incredibly well after such a major surgery. They discussed the fact that the cancer is still active and he is by no means cured. Tom needs to focus on what is important right now. The surgery bought him 5 years & if they can stay on top of the cancer he will continue to look at life 5 years at a time.
I told Tom that none of this is shocking to me. I stopped reading all the website information a year ago because it all confirmed this. It has been in the back of my mind for that past 2 years. I try very hard not to take a day for granted (though at times I have greatly failed). So hearing this was once again very sobering and I again thought about how fragile life is. Then verses come to mind. I will share this one:
Psalms 44:5
O God - my God! O my soul, why be so gloomy and discouraged? Trust in God! I shall again praise him for his wondrous help; he will make me smile again, for his is my God!
Tuesday, July 14, 2009
Grievance Letters
What happened to summer? We saw a glimpse of it....I have a slight tan as proof! This week Katie is in the midst of Mega Sports Bible camp and she picked golfing as her sport. It's like Vacation Bible school but with a sports theme. We had 120 kids the first day at the Wayland City Park, how awesome! The boys are just relaxing these days. I do have to say it was very strange to come home one day last week to see Kyle & his cousin come from golf together & his cousin was driving! I know he is a good driver, but am I ready for this?
We are still getting paperwork together for Tom's Grievance. Tom's primary sent his paperwork to our home so that we can fax our grievance with it. The next step is to talk with the Oncologist & see where their office is at in this process. Hopefully all our efforts will pay off & the PET scan will be approved. We also got the results for Tom's blood draw. The new number is 399, up 4 counts since the end of May. I am so glad that his primary doctor is very active in Tom's care. I can't say enough how impressed I am not only with Tom's primary doctor, but with the whole office staff.
On Sunday our Pastor was talking about life & how difficult it can be. It was compared to a Chess match. I agreed when he said that some days we get up and don't feel like we are on the winning side or that we are prepared for the battle. I also like how God is 15 moves ahead of us. The great thing is that we know who the winner is!
We are still getting paperwork together for Tom's Grievance. Tom's primary sent his paperwork to our home so that we can fax our grievance with it. The next step is to talk with the Oncologist & see where their office is at in this process. Hopefully all our efforts will pay off & the PET scan will be approved. We also got the results for Tom's blood draw. The new number is 399, up 4 counts since the end of May. I am so glad that his primary doctor is very active in Tom's care. I can't say enough how impressed I am not only with Tom's primary doctor, but with the whole office staff.
On Sunday our Pastor was talking about life & how difficult it can be. It was compared to a Chess match. I agreed when he said that some days we get up and don't feel like we are on the winning side or that we are prepared for the battle. I also like how God is 15 moves ahead of us. The great thing is that we know who the winner is!
Monday, July 6, 2009
Poked
I hope everyone had a nice 4th. We spent the weekend with friends & family. The weather was not the best, however we had a great time regardless. The kids liked playing in the two different lakes and said that neither lakes were "to cold" to swim in. Tom and I enjoyed watching them from shore on Friday, but when Saturday came around Tom had to get up on ski's. He was very sore by Sunday afternoon!
Tom's oncologist called with an order for Tom to get his blood drawn for the latest report being sent to the insurance company. We have no other information so I would dare say the report still needs to be sent from the doctor's offices. We once again are in the waiting pattern. I hope that the 3rd time is the charm! It has been interesting to hear other people's experiences and perception about the health care system. The sad part is that the consensus is that these approval processes will get worse before the system gets better.
Not too much else to report at this time. We just keep plugging away at the house projects. I keep picking out the stuff and Tom's honey do list just keeps growing longer! Pretty soon all our walls will have color, goodbye primer white!
As we wait I reflect on King Solomon's words, the words of a wise man:
"We can make our plans, but the final outcome is in God's hands. We can always "prove" that we are right, but is the Lord convinced?" Proverbs 16:1-2
Tom's oncologist called with an order for Tom to get his blood drawn for the latest report being sent to the insurance company. We have no other information so I would dare say the report still needs to be sent from the doctor's offices. We once again are in the waiting pattern. I hope that the 3rd time is the charm! It has been interesting to hear other people's experiences and perception about the health care system. The sad part is that the consensus is that these approval processes will get worse before the system gets better.
Not too much else to report at this time. We just keep plugging away at the house projects. I keep picking out the stuff and Tom's honey do list just keeps growing longer! Pretty soon all our walls will have color, goodbye primer white!
As we wait I reflect on King Solomon's words, the words of a wise man:
"We can make our plans, but the final outcome is in God's hands. We can always "prove" that we are right, but is the Lord convinced?" Proverbs 16:1-2
Saturday, June 27, 2009
Insurance Progress Report 2.0
This week was a hot one! I think we hit 90's for the first time this year. The rest of the family went out and enjoyed Cobb lake on the hottest day this year, thanks for the invite Cathy.
On Thursday I received a call from Tom's case manager. The PET scan has been denied again. This launched a number of phone calls, and I was the one in charge since Tom was @ WMU enjoying the day with Cody. I talked with the Oncologist office and with Tom's primary doctors office. It is still not clear if it is the "head to toe" area of coverage or the PET scan itself that has been denied. The denial stated that guidelines are not met to be covered for a PET. What is clear is that both doctors will be sending in letters to help resolve this issue. I also asked if having a team of doctors agreeing to this procedure would be beneficial. So far we are not getting U of M involved, but I did question if it was a good the idea. It took me half the morning to make all the calls. Tom's reply was the "I must be cured, the insurance company thinks so" I did appreciate his sense of humor but once again by the end of all the phone calls I just felt frustration. For now we wait as the doctors send in their letters and have the medical director review further information to make another determination as to what "fits" into their approval.
Not only does life keep going on through these struggles, there are many small blessings & trials along life's way. We can react to them many different ways. I believe it is not the struggle we will look back on, but the way we handle them. I prefer to pray through them....
Psalms 46:1 "GOD IS OUR refuge and strength, a tested help in times of trouble."
On Thursday I received a call from Tom's case manager. The PET scan has been denied again. This launched a number of phone calls, and I was the one in charge since Tom was @ WMU enjoying the day with Cody. I talked with the Oncologist office and with Tom's primary doctors office. It is still not clear if it is the "head to toe" area of coverage or the PET scan itself that has been denied. The denial stated that guidelines are not met to be covered for a PET. What is clear is that both doctors will be sending in letters to help resolve this issue. I also asked if having a team of doctors agreeing to this procedure would be beneficial. So far we are not getting U of M involved, but I did question if it was a good the idea. It took me half the morning to make all the calls. Tom's reply was the "I must be cured, the insurance company thinks so" I did appreciate his sense of humor but once again by the end of all the phone calls I just felt frustration. For now we wait as the doctors send in their letters and have the medical director review further information to make another determination as to what "fits" into their approval.
Not only does life keep going on through these struggles, there are many small blessings & trials along life's way. We can react to them many different ways. I believe it is not the struggle we will look back on, but the way we handle them. I prefer to pray through them....
Psalms 46:1 "GOD IS OUR refuge and strength, a tested help in times of trouble."
Sunday, June 21, 2009
Still Waiting
The kids are definitely liking the staying up later and for the most part they are sleeping in, which is worth the trade off for "my" alone night time. We are done with ball season. Katie's team did pretty good, but the girls had more interest socializing than being into the ball game. Cody's team finished 7-3, what a great record. The boys really got into it as the season progressed and it showed! Cody seemed to enjoy this season.
Saturday we went to Michigan's Adventure, thanks Robin for thinking about our family. We had beautiful weather and great fun! The lines were not long at all and the water felt good on such a warm day. I felt bad that we lost my brother at the water park but was relieved to know that his wife had an eye on him. We should have had an adult buddy system! I hope they also enjoyed the park and we did have fun seeing them there. This Thursday Cody and Tom are heading down to WMU for a football camp. Tom is excited that one of his boys is still into football and missed it. I think this camp will be good for Cody and will keep him focused for this fall.
Tom has also been very busy talking with our insurance company. He is trying to understand the process of the people approving tests & scans. He was "misinformed" about why the process was denied, which he was not happy about being told false information. He was able to get his Case Manger involved and hopefully everybody understands what is happening. Since Tom has been denied, the case will go in front of a board of doctors and will be reviewed, including the Oncologist notes about why the test has been ordered. We will have the results by Tuesday. Hopefully it will be approved at this time. Tom feels that 2 weeks have been wasted in the medical world. It is frustrating that we have been told many times how early detection and prevention is the best way to beat this disease and yet waiting on the approval has prevented the early detection that leads to prevention!
We are learning the lessons of patience in our household! It is a strange feeling to be outside of Toms medical circle. I have given it all to Tom to handle...another piece of control out of my hands, which is also teaching me that it is ok to give up things. I love the verse that says "You will keep on guiding me all my life with your wisdom and counsel; and afterwards receive me into the glories of heaven! And I desire no one on earth as much as you! My health fails, my spirits droop, yet God remains! He is the strength of my heart; he is mine forever!" Psalms 73:24-26
Saturday we went to Michigan's Adventure, thanks Robin for thinking about our family. We had beautiful weather and great fun! The lines were not long at all and the water felt good on such a warm day. I felt bad that we lost my brother at the water park but was relieved to know that his wife had an eye on him. We should have had an adult buddy system! I hope they also enjoyed the park and we did have fun seeing them there. This Thursday Cody and Tom are heading down to WMU for a football camp. Tom is excited that one of his boys is still into football and missed it. I think this camp will be good for Cody and will keep him focused for this fall.
Tom has also been very busy talking with our insurance company. He is trying to understand the process of the people approving tests & scans. He was "misinformed" about why the process was denied, which he was not happy about being told false information. He was able to get his Case Manger involved and hopefully everybody understands what is happening. Since Tom has been denied, the case will go in front of a board of doctors and will be reviewed, including the Oncologist notes about why the test has been ordered. We will have the results by Tuesday. Hopefully it will be approved at this time. Tom feels that 2 weeks have been wasted in the medical world. It is frustrating that we have been told many times how early detection and prevention is the best way to beat this disease and yet waiting on the approval has prevented the early detection that leads to prevention!
We are learning the lessons of patience in our household! It is a strange feeling to be outside of Toms medical circle. I have given it all to Tom to handle...another piece of control out of my hands, which is also teaching me that it is ok to give up things. I love the verse that says "You will keep on guiding me all my life with your wisdom and counsel; and afterwards receive me into the glories of heaven! And I desire no one on earth as much as you! My health fails, my spirits droop, yet God remains! He is the strength of my heart; he is mine forever!" Psalms 73:24-26
Sunday, June 14, 2009
Denied
It has been very strange getting used to the full time schedule. The kids have been pretty good with the "To Do" lists. Tom has painted our bedroom, so long primer :) He continues to work on the living room also. I went to Saugatuck yesterday with some girlfriends and had such a wonderful time. Thanks girls for showing me the town & I so enjoyed the paddle boat ride!
Tom is on a 6 night working spree again this week. Hopefully he will not continue to spread himself so thin. I can tell that he is wearing himself out. How he does it, I'm not sure. I was hoping that working full time would help him lessen his schedule. I guess time will tell.
Tom had a few more conversations with insurance, doctor offices and such this week. By Thursday we did not have any notification about Tom's scan. I called Tom's primary office to get a status update. I should have waited a day because on Friday Tom received the denial letter from the Insurance company. Tom started his phone calls to get this issue resolved. He was able to find out why it was denied. Now to get it straighted out and back to the authorities of Preauthorization. Tom will not be as patient as I have been, which I understand; it gets old to have round and round phone calls. Lets just say it is frustrating! So we will wait for another week to get his scan scheduled.
Thanks so much for the cards and words of encouragement. They have helped remind us Who is truly in control! Prayer warriors, please help Tom and I to stay patient as we go through this whole process.
Proverbs 12:25 "Anxious hearts are very heavy but a word of encouragement does wonders!"
Tom is on a 6 night working spree again this week. Hopefully he will not continue to spread himself so thin. I can tell that he is wearing himself out. How he does it, I'm not sure. I was hoping that working full time would help him lessen his schedule. I guess time will tell.
Tom had a few more conversations with insurance, doctor offices and such this week. By Thursday we did not have any notification about Tom's scan. I called Tom's primary office to get a status update. I should have waited a day because on Friday Tom received the denial letter from the Insurance company. Tom started his phone calls to get this issue resolved. He was able to find out why it was denied. Now to get it straighted out and back to the authorities of Preauthorization. Tom will not be as patient as I have been, which I understand; it gets old to have round and round phone calls. Lets just say it is frustrating! So we will wait for another week to get his scan scheduled.
Thanks so much for the cards and words of encouragement. They have helped remind us Who is truly in control! Prayer warriors, please help Tom and I to stay patient as we go through this whole process.
Proverbs 12:25 "Anxious hearts are very heavy but a word of encouragement does wonders!"
Monday, June 1, 2009
Moving up Test?
Today was as crazy as Monday's get. I started my new job and was called from school at noon due to a sick child. Grandma to the rescue to pick up a sick girl with an upset stomach! Poor Tom did not get much sleep after she got home. After Katie got settled the phone rang from the Oncologist office. Dr. Campbell is ordering a Head to Toe PET Scan. Of course we know from experience that it will take a week to get the approval & then more time to schedule it. This time around we have 2 PET Scans in GR...one at the Lemmon Holton Center and the other at Saint Mary's....so it will be interesting how far out his date will be for Tom to endure 2 step (including the 4 hour) process. The Oncologist office gave us the option to talk with Dr. Campbell or U of M about the results. Tom is sticking with the GR team.
Tom, once again is not getting caught up in the numbers. I am staying focused on our daily lives and we will continue to play the waiting game. I have to selfishly say that I am glad that these results were after our wonderful 20th getaway. However, we will as we always have, deal the what we are given.
Romans 8:18 Yet what we suffer now is nothing compared to the glory he will give us later.
Tom, once again is not getting caught up in the numbers. I am staying focused on our daily lives and we will continue to play the waiting game. I have to selfishly say that I am glad that these results were after our wonderful 20th getaway. However, we will as we always have, deal the what we are given.
Romans 8:18 Yet what we suffer now is nothing compared to the glory he will give us later.
Thursday, May 28, 2009
Message
Today felt more like a nice fall day than the beginnings of summer. The kids are on the count down to the last 5 days of school. I am getting ready for all the changes that will take place in the next couple of weeks. Tom has been working on the house, painting our living room & kitchen, and that is just the start.
Tonight after Cody's ballgame we came home to a message from Tom's primary doctor. He stated that he received the results from Tom's last blood work. The new calcitonin level is now 395. This is up from the last draw of 285 done in March (the jumps have been pretty big when his numbers have gone up lately). It was suggested that Tom talk with his Oncologist for the next blood work and/or scan. I believe that the scans will not be moved up but indicates that the cancer is still somewhere.
Psalms 28:2 Lord, I lift my hands to heaven and implore your help. Oh, listen to my cry
Tonight after Cody's ballgame we came home to a message from Tom's primary doctor. He stated that he received the results from Tom's last blood work. The new calcitonin level is now 395. This is up from the last draw of 285 done in March (the jumps have been pretty big when his numbers have gone up lately). It was suggested that Tom talk with his Oncologist for the next blood work and/or scan. I believe that the scans will not be moved up but indicates that the cancer is still somewhere.
Psalms 28:2 Lord, I lift my hands to heaven and implore your help. Oh, listen to my cry
Saturday, May 23, 2009
Reflection
This past week has been a little emotional. I have started to say goodbye to the people I work with. I am in the process of emptying my office, it's amazing how much one accumulates in 7 years. During all this Tom and I were able to get away on our anniversary for a night away (thanks again Grandma & Grandpa). It was beautiful in South Haven and the weather was itself a gift! I can't believe that 20 years ago we started this journey together. Never did I consider all the ups and downs that life would throw our way. We have been so blessed with our healthy & active children (though they do have too much of "your or my" attitude, opinion, or verbiage at times my dear husband). When I look back to our wedding I remember the thoughts I had and the plans that were yet to be made. So many times we had blessings we took for granted or claimed that we deserved because we worked hard for them. This week I could only praise God that Tom is still here with me. I thank the skill of his surgeon and the determination to "cut out" all the cancer during the long day of surgery. I hold our 20th getaway so dearly in my heart. I pray that we can enjoy many more years together.
Life is hard, marriage can be a challenge, and we can let our own thoughts get in the way of what God has planned for us. Please excuse this "mushy" post as I am not always so sentimental. However, if there is anything I have learned in life is not to look at the "what if" and start thanking God for the "what is".
Galatians 5:14 For the whole Law can be summed up in this one command: "Love others as you love yourself"
Life is hard, marriage can be a challenge, and we can let our own thoughts get in the way of what God has planned for us. Please excuse this "mushy" post as I am not always so sentimental. However, if there is anything I have learned in life is not to look at the "what if" and start thanking God for the "what is".
Galatians 5:14 For the whole Law can be summed up in this one command: "Love others as you love yourself"
Thursday, May 14, 2009
What's new?
I finally got my grade and was glad to see the my GPA is a 3.5 so much for starting again with a 4 point! Oh well, it's hard to get back into those school study habits after 14 years of not exercising them. I am glad to be done for the summer as we spend 4 nights out at the ball fields.
Kyle was able to go on a class trip to Toronto Canada and has been gone since Monday evening. He will be back tomorrow morning and Tom and I can't wait to see him and hear how it went. The teachers had the days packed with places to visit. The travel to and from is done during the night. I am sure he will be exhausted! Thank you to the Grandparents for helping him be able to go.
Our family will be making some adjustments as I accepted a full time job doing Accounts Receivable for a company here in GR. There will be new challenges and benefits for all of us at the Andrews' household. I am so thankful that I have had almost 8 great years at Behler-Young and will miss the "team". I have made a lot a wonderful friendships with people across our state and will miss sharing life with them (oh yeah, and working too!) It has been an experience that I will take with me and fondly remember.
I have made traded calls with both the surgeon and oncologist offices in the past week. They both seem to be a little lost in the paper trail. It is hard going back and forth to the different doctors and confirming they got the results so they can make a plan of direction. However, I believe that we are once again concentrating on the blood levels and will be repeating these scans in a few months. Tom should be receiving the blood work order in a couple of days to get poked. I am sure he can't wait!
Well, that is more than enough information this time around. Enjoy the spring weather!
Kyle was able to go on a class trip to Toronto Canada and has been gone since Monday evening. He will be back tomorrow morning and Tom and I can't wait to see him and hear how it went. The teachers had the days packed with places to visit. The travel to and from is done during the night. I am sure he will be exhausted! Thank you to the Grandparents for helping him be able to go.
Our family will be making some adjustments as I accepted a full time job doing Accounts Receivable for a company here in GR. There will be new challenges and benefits for all of us at the Andrews' household. I am so thankful that I have had almost 8 great years at Behler-Young and will miss the "team". I have made a lot a wonderful friendships with people across our state and will miss sharing life with them (oh yeah, and working too!) It has been an experience that I will take with me and fondly remember.
I have made traded calls with both the surgeon and oncologist offices in the past week. They both seem to be a little lost in the paper trail. It is hard going back and forth to the different doctors and confirming they got the results so they can make a plan of direction. However, I believe that we are once again concentrating on the blood levels and will be repeating these scans in a few months. Tom should be receiving the blood work order in a couple of days to get poked. I am sure he can't wait!
Well, that is more than enough information this time around. Enjoy the spring weather!
Tuesday, May 5, 2009
Looking forward to Summer
My class is done :) Yeah!!! Now onto other focuses this summer. The 2 younger kids are busy with ball and we will soon be at games 4 nights a week. The homework is not getting lighter yet. The kids continue to have really had good attitudes. However, we are up a little later each night trying to get it all done.
Tom has had a few busy weeks of work and will hopefully be able to slow down a little bit and get into the summer fun. I don't know how he does it!
I plan to start making some phone calls once again. We feel a little lost between the oncologist & U of M direction. I hope that everybody is on the same page and that there is a plan of action and that someone will share it with us. It is about time for Tom to have his blood drawn again and that is the immediate next step.
I know that this year our focus should not be on the "cancer" and that we should enjoy the summer and the family/friend time. I pray for peace and patience during these wait and see times. I found this verse and would like to share it:
Psalms 27:14
Don't be impatient. Wait for the Lord, and he will come and save you! Be brave and stouthearted and courageous. Yes, wait and he will help you.
Tom has had a few busy weeks of work and will hopefully be able to slow down a little bit and get into the summer fun. I don't know how he does it!
I plan to start making some phone calls once again. We feel a little lost between the oncologist & U of M direction. I hope that everybody is on the same page and that there is a plan of action and that someone will share it with us. It is about time for Tom to have his blood drawn again and that is the immediate next step.
I know that this year our focus should not be on the "cancer" and that we should enjoy the summer and the family/friend time. I pray for peace and patience during these wait and see times. I found this verse and would like to share it:
Psalms 27:14
Don't be impatient. Wait for the Lord, and he will come and save you! Be brave and stouthearted and courageous. Yes, wait and he will help you.
Tuesday, April 21, 2009
Life
It does not seem like it has been 20 days since my last post. It has been very busy in the Andrews' household. I know that I sound like a broken record, but life with 3 kids keeps one running! Thank you to the Gantzers for sharing their boy during Spring Break. I believe everyone had such a fun time. I have to say that I enjoyed the first bon fire of the year the most that week. The s'mores were sooo tasty!
Tom has remained busy as usual. He was able to also enjoy some of the kids spring break also, but he felt his age a few hours after roller skating! He also enjoyed seeing the family for Easter dinner.
Tom had a discussion with the nurse at the University of Michigan. There was an agreement that at this time there is not a need for him to see Dr. Prince as all the scans were showing clean. However Dr. Prince is still suspicious about the uptake in the Octreoscan in the chest area and the increase in the Calcitonin levels. So until our next meeting in August with Dr. Campbell we will just have to "wait and see" ....the life of a cancer patient!
There is a lot going on in our lives. I have 2 more classes to go & then I will take a break for the summer. The 2 youngest Andrews' are in ball this year and Katie is finishing up another Cheer leading session. Tom may be joining me this fall at KVCC for a Biology class, which will be fun to attend a class together once again. This time it will be him helping me understand the course studies, as last time it was Principles of Accounting. Who's the bean counter?! Thanks for letting us share our Life with you. Have a blessed week.
Tom has remained busy as usual. He was able to also enjoy some of the kids spring break also, but he felt his age a few hours after roller skating! He also enjoyed seeing the family for Easter dinner.
Tom had a discussion with the nurse at the University of Michigan. There was an agreement that at this time there is not a need for him to see Dr. Prince as all the scans were showing clean. However Dr. Prince is still suspicious about the uptake in the Octreoscan in the chest area and the increase in the Calcitonin levels. So until our next meeting in August with Dr. Campbell we will just have to "wait and see" ....the life of a cancer patient!
There is a lot going on in our lives. I have 2 more classes to go & then I will take a break for the summer. The 2 youngest Andrews' are in ball this year and Katie is finishing up another Cheer leading session. Tom may be joining me this fall at KVCC for a Biology class, which will be fun to attend a class together once again. This time it will be him helping me understand the course studies, as last time it was Principles of Accounting. Who's the bean counter?! Thanks for letting us share our Life with you. Have a blessed week.
Wednesday, April 1, 2009
Results
It is harder for us to study as the nights are lighter longer and the days are warming up a little. I am glad that Spring break is only a day away! We are not able to go away this year, but we will have fun filled days regardless. Maybe the activities here will be less crowded.
Tom finally had his MRI last Thursday here in GR. I describe the experience as taking a 4 year old to a place they do not want to be, yes I mean figuratively kick and screaming. I am glad that is behind us! The blood count results have come back , the calcitonin level has dropped 13 points, down to 285. It is not as big of a drop as the increase , but it is at least in the right direction.
Next week Tom's Oncologist will read the MRI results and let us know what the next step will be as he is currently taking his Spring Vacation this week. Our next appointment with his office is not until August, so we may have summer filled with more days of fun than doctor visits this time around!
Psalms 38:9 "Lord, you know how I long for my health once more. You hear my every sigh."
Tom finally had his MRI last Thursday here in GR. I describe the experience as taking a 4 year old to a place they do not want to be, yes I mean figuratively kick and screaming. I am glad that is behind us! The blood count results have come back , the calcitonin level has dropped 13 points, down to 285. It is not as big of a drop as the increase , but it is at least in the right direction.
Next week Tom's Oncologist will read the MRI results and let us know what the next step will be as he is currently taking his Spring Vacation this week. Our next appointment with his office is not until August, so we may have summer filled with more days of fun than doctor visits this time around!
Psalms 38:9 "Lord, you know how I long for my health once more. You hear my every sigh."
Tuesday, March 24, 2009
Today
Today Tom and Cody are heading off to Chicago! They should have beautiful weather and I hope they are able to just enjoy the day. Along with Cody, Tom is chaperoning 2 other boys and I know he can handle that. Tom and Cody have both been looking forward to this field trip all year long.
Tom's MRI is scheduled for Thursday, March 26. I have called U of M to cancel the appointment for Friday, but they wanted the doctor's blessing first. However, Tom has other plans for Friday so we will have to reschedule either way. Last Friday, March 20 Tom was poked again and I have a call into Tom's primary office to get the results of his calcitonin levels. So for now we just enjoy the day, and warmer weather!
Thanks for the beautiful cards and words of encouragement, they are cherished in our hearts.
Matthew 6:33-34"But seek first his kingdom and his righteousness, and all these things will be given to you as well. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."
Tom's MRI is scheduled for Thursday, March 26. I have called U of M to cancel the appointment for Friday, but they wanted the doctor's blessing first. However, Tom has other plans for Friday so we will have to reschedule either way. Last Friday, March 20 Tom was poked again and I have a call into Tom's primary office to get the results of his calcitonin levels. So for now we just enjoy the day, and warmer weather!
Thanks for the beautiful cards and words of encouragement, they are cherished in our hearts.
Matthew 6:33-34"But seek first his kingdom and his righteousness, and all these things will be given to you as well. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."
Sunday, March 15, 2009
New Scan Same Results
The old saying goes....No news is good news. Tom's latest Octreoscan came back clear. While this is good, it just means the cancer hasn't grown large enough to find. Tom's primary doctor believes that with the previous radiation treatment is keeping the cancer from becoming aggressive.
So it looks like we will shift back into a wait and see mode. They will more than likely hold off any scans until August. I am sure, to Tom's delight, that they will only poke him every couple of months for his blood counts.
Tom cancelled his MRI for last Saturday night. He will have to call this week to reschedule it. He felt that there was no hurry to get this done as we have decided to also cancel the U of M visit. There is no need to talk with a surgeon when there is nothing he can do at this point. You can't remove what you can't see. Honestly I believe Tom needs a break from scans, doctor visits, and hospitals (work excluded).
Last weekend Tom was able to enjoy some time out in the woods with his sons. This was Cody's first time hunting. Even though it was a rainy day, I think all my boys had a good time. Cody even got his first rabbit. Tom was very proud. Being in the woods brings back fond memories of rabbit hunting with his grandfather. The boys really got into it but I put my foot down when they asked if they could get a Beagle!
So it looks like we will shift back into a wait and see mode. They will more than likely hold off any scans until August. I am sure, to Tom's delight, that they will only poke him every couple of months for his blood counts.
Tom cancelled his MRI for last Saturday night. He will have to call this week to reschedule it. He felt that there was no hurry to get this done as we have decided to also cancel the U of M visit. There is no need to talk with a surgeon when there is nothing he can do at this point. You can't remove what you can't see. Honestly I believe Tom needs a break from scans, doctor visits, and hospitals (work excluded).
Last weekend Tom was able to enjoy some time out in the woods with his sons. This was Cody's first time hunting. Even though it was a rainy day, I think all my boys had a good time. Cody even got his first rabbit. Tom was very proud. Being in the woods brings back fond memories of rabbit hunting with his grandfather. The boys really got into it but I put my foot down when they asked if they could get a Beagle!
Sunday, March 8, 2009
One to Go
Tom had his Octreoscan on Wednesday and Thursday of this past week. I tried to keep my husband amused. I'm not sure if he laughed harder when I was confused about which floor to go to when we were on level 1 and going down to the basement (and there is only one choice for those who are wondering) or when I pushed the wrong button and set off the alarm bell. You would have thought my mind was elsewhere! I was treated to breakfast in the cafeteria when the ordeal was done, unfortunately I spilled my coffee before we sat down. He can't take me anywhere!
Tom's MRI has been rescheduled for this Saturday, March 14, still plenty of time to get the results to the U of M for our consult. Tom is sick of being poked and prodded and I can't blame him. I am hoping that we hear from a doctor before we head there, but only if the news is good.
We take a breath this week and remember to cherish all of our days. Thanks again to those of you who follow Tom's progress and for assurances you share with us. I watched Beth Moore this past week and really agreed with what she said. She talked about walking with God and trying not to control or lead our situations, especially the hard days. Her message was with me all during Tom's test Thursday and beyond. "I trust God. I trust God!" Amen
Tom's MRI has been rescheduled for this Saturday, March 14, still plenty of time to get the results to the U of M for our consult. Tom is sick of being poked and prodded and I can't blame him. I am hoping that we hear from a doctor before we head there, but only if the news is good.
We take a breath this week and remember to cherish all of our days. Thanks again to those of you who follow Tom's progress and for assurances you share with us. I watched Beth Moore this past week and really agreed with what she said. She talked about walking with God and trying not to control or lead our situations, especially the hard days. Her message was with me all during Tom's test Thursday and beyond. "I trust God. I trust God!" Amen
Sunday, March 1, 2009
Testing, Testing
We had to make a few phone calls to get all the tests set up to be completed before we went to U of M. Tom's allergies to the contrast does not allow him the freedom to be tested anywhere, he must be tested at the hospital. So the next couple of weeks Tom will be busy with the Octreoscan & MRI.
Wednesday, March 4 Tom has his Octreoscan scheduled. He will receive an afternoon nuclear injection and then after a 4 hour wait, he will have his first scan. Thursday morning he will have another scan which is a lengthy process and hopefully they will not need another test a 3rd morning. Wednesday, March 11 Tom has his MRI scheduled and this process will take about an hour to complete.
This will all be forwarded to the U of M for our March 27 consultation with Dr. Prince. I am glad that we were able to move Tom's U of M appointment from April 17 to March 27. It's interesting that the appointment date was changed before we even had this new diagnosis. God is good!
John 17:31-33 "Do you finally believe this?" Jesus asked. "But the time is coming - in fact, it is here - when you will be scattered, each one returning to his own home, leaving me alone. Yet I will not be alone, for the Father is with me. I have told you all this so that you will have peace of heart and mind. Here on earth you will have many trials and sorrows; but cheer up, for I have overcome the world."
Wednesday, March 4 Tom has his Octreoscan scheduled. He will receive an afternoon nuclear injection and then after a 4 hour wait, he will have his first scan. Thursday morning he will have another scan which is a lengthy process and hopefully they will not need another test a 3rd morning. Wednesday, March 11 Tom has his MRI scheduled and this process will take about an hour to complete.
This will all be forwarded to the U of M for our March 27 consultation with Dr. Prince. I am glad that we were able to move Tom's U of M appointment from April 17 to March 27. It's interesting that the appointment date was changed before we even had this new diagnosis. God is good!
John 17:31-33 "Do you finally believe this?" Jesus asked. "But the time is coming - in fact, it is here - when you will be scattered, each one returning to his own home, leaving me alone. Yet I will not be alone, for the Father is with me. I have told you all this so that you will have peace of heart and mind. Here on earth you will have many trials and sorrows; but cheer up, for I have overcome the world."
Thursday, February 19, 2009
It's Back
We met with Dr. Campbell, Tom's Oncologist and went over the test results. Here is what we do know. All indications are that the cancer is active and in the early stages of forming somewhere in the neck again. Because it is so small and the fact that Tom has so much scar tissue in the neck, it makes it difficult for them to find it at this time. The cancer has not spread to the lungs or lower.
Dr. Campbell has order an MRI and a Octreoscan here at Butterworth. He wants these test performed ASAP so that he can forward the results to Tom's surgeon at the U of M for our meeting on March 27.
If these tests show the mass we will discuss surgery at the U of M with radiation to follow at Butterworth, just like last time. If these test are also inconclusive, then we will repeat these scans in 3-4 months until the mass is large enough to be detected.
So until this next meeting Tom will try to keep his focus on work, family, and sprinkle in some fun. Thanks for continued prayers as we try to comprehend this and what this means.
Dr. Campbell has order an MRI and a Octreoscan here at Butterworth. He wants these test performed ASAP so that he can forward the results to Tom's surgeon at the U of M for our meeting on March 27.
If these tests show the mass we will discuss surgery at the U of M with radiation to follow at Butterworth, just like last time. If these test are also inconclusive, then we will repeat these scans in 3-4 months until the mass is large enough to be detected.
So until this next meeting Tom will try to keep his focus on work, family, and sprinkle in some fun. Thanks for continued prayers as we try to comprehend this and what this means.
Monday, February 16, 2009
New Feature
We had added a new feature to Tom's blog called Followers. You will see it on the left hand column. If you would like to join it will keep you updated on our journey. This option will give us an idea of how many people we are reaching with this blog. If you choose to remain anonymous, that is fine also.
I have also added an Endocrine website that gives more information about Tom's cancer, etc.
Tom's CT & chest x-ray is tomorrow at Butterworth. Thanks for your continued support. I appreciate the Prayer Warriors who have not stopped praying for our family, especially Tom.
I turn again to the Psalms (don't be surprised) as I have turned to these all my life, maybe it is the poet in me. Anyway I would like to share with you:
To you, O Lord, I pray. Don't fail me, Lord, for I am trusting in you. Don't let my enemies succeed. Psalms 25:1-2 Show me the path where I should go, O Lord; point out the right road for me to walk. Lead me; teach me; for you are the God who gives salvation. I have no hope except in you. Overlook my youthful sins, O Lord! Look at me instead through eyes of mercy and forgiveness, through eyes of everlasting love and kindness. Psalms 25:4-7
I have also added an Endocrine website that gives more information about Tom's cancer, etc.
Tom's CT & chest x-ray is tomorrow at Butterworth. Thanks for your continued support. I appreciate the Prayer Warriors who have not stopped praying for our family, especially Tom.
I turn again to the Psalms (don't be surprised) as I have turned to these all my life, maybe it is the poet in me. Anyway I would like to share with you:
To you, O Lord, I pray. Don't fail me, Lord, for I am trusting in you. Don't let my enemies succeed. Psalms 25:1-2 Show me the path where I should go, O Lord; point out the right road for me to walk. Lead me; teach me; for you are the God who gives salvation. I have no hope except in you. Overlook my youthful sins, O Lord! Look at me instead through eyes of mercy and forgiveness, through eyes of everlasting love and kindness. Psalms 25:4-7
Tuesday, February 10, 2009
Plan Changes
Today Tom's Oncologist called and he has ordered Tom to go in for a CT and x-ray of the neck and chest on Tuesday at Butterworth. By the urgency in which they are getting him in, leads me to believe the doctor is concerned with the high counts. We will get the results two days later when we meet with him.
We are adding a new specialist to Tom's list of doctors. Tom's primary doctor is referring us to Dr. Tate, an Endocrinologist here in the west side of the state. The meet and greet has not been set up yet, but stay tuned.
Please keep Tom in your list of prayers. He keeps his sense of humor and takes it all logically, unlike his other half.
We are adding a new specialist to Tom's list of doctors. Tom's primary doctor is referring us to Dr. Tate, an Endocrinologist here in the west side of the state. The meet and greet has not been set up yet, but stay tuned.
Please keep Tom in your list of prayers. He keeps his sense of humor and takes it all logically, unlike his other half.
Monday, February 9, 2009
Spoke too soon
After blogging last night Tom's Oncologist called today with the results of his latest blood work. His Calcitonin levels has shot up to 298. This is the highest level since pre surgery. It is not what we wanted to hear, but Tom is taking it rather well. He just told me to step up those College classes! At this time he is not going to worry about it, and see what happens when they poke him in March at the U of M. I however do not share my husband's "wait and see" attitude. I am not sure how he goes on with his daily grind. He does it with a smile. He just keeps reminding me it is out of his hands. It is definitely something I need reminding of today.
Tonight I remember Psalms 40:1-2
I waited patiently for God to help me; then he listened and heard my cry. He lifted me out of the pit of despair, out from the bog and the mire, and set my feet on a hard, firm path and steadied me as I walked along.
Tonight I remember Psalms 40:1-2
I waited patiently for God to help me; then he listened and heard my cry. He lifted me out of the pit of despair, out from the bog and the mire, and set my feet on a hard, firm path and steadied me as I walked along.
Sunday, February 8, 2009
Update
I think we have finally gotten the good old fashion Michigan crud in our house. Katie had 6 girls over with a birthday/slumber party which went well, but then the "stuff" hit our house this weekend (two kids with fevers and one with a sore throat), it is going around! However the sun is shinning and warmer weather has hit Michigan. I am looking forward to the change and hoping that the change in weather is also the end of the sickness that has seemed to hit many families.
Tom is still dealing with the respiratory issues. It seems every time the kids get something he catches a part of it. He is handling it well, but he is the "weakest link" and the poor man does not seem to get a break. I was able to move Tom's U of M appointment to March. Tom was thinking I should just cancel it, but I reminded him that the Oncologist would like him to continue the visits there as well. We did not get back the calcitonin level from his last blood work yet, so I am anxious to see what the result will be. Tom will be going back to therapy a couple of times a week in order to help him with the swelling of his neck. I am hopeful that this will also help the long term breathing issues.
It is so hard to truly express how thankful we are that so many people continue to ask about & pray for our family. I believe it is what keeps us going. My Aunt has a signature that she attaches to each e-mail and I would love to share it with you as it fits with everyone and where we are in life:
Happy Moments...praise God
Difficult Moments...seek God
Quiet Moments...worship God
Painful Moments...trust God
Every Moment...thank God
Tom is still dealing with the respiratory issues. It seems every time the kids get something he catches a part of it. He is handling it well, but he is the "weakest link" and the poor man does not seem to get a break. I was able to move Tom's U of M appointment to March. Tom was thinking I should just cancel it, but I reminded him that the Oncologist would like him to continue the visits there as well. We did not get back the calcitonin level from his last blood work yet, so I am anxious to see what the result will be. Tom will be going back to therapy a couple of times a week in order to help him with the swelling of his neck. I am hopeful that this will also help the long term breathing issues.
It is so hard to truly express how thankful we are that so many people continue to ask about & pray for our family. I believe it is what keeps us going. My Aunt has a signature that she attaches to each e-mail and I would love to share it with you as it fits with everyone and where we are in life:
Happy Moments...praise God
Difficult Moments...seek God
Quiet Moments...worship God
Painful Moments...trust God
Every Moment...thank God
Thursday, January 29, 2009
Plan for 2009
This is the first doctor visit of 2009 and it went pretty well. Tom and I headed up to Lemmon Holton Cancer Center today for the appointment with his Oncologist. Of course no trip to the hospital would be complete without Tom getting poked and more blood drawn. We met with Dr. Campbell's Nurse Practitioner. We went over Tom's last PET Scans, which were clear. We talked about the fact that his last blood work had shown his Calcitonin counts were down for the first time, which were encouraging!
We discussed the plan for 2009. In 6 months Tom will have a chest x-ray and more blood work and then meet with the Oncologist to go over the results. It appears that we will live our lives 6 months at a time. In the meantime Tom will talk with his Surgeon at the U of M about his continuing post-op difficulties. He still wakes up most mornings with swelling and difficulty breathing. Tom describes it as living everyday with a noose around his neck. He doesn't complain much but I can tell he struggles. We will head over to the U of M on April 17, and I am sure he will donate more of his blood at that time. I want to move the appointment up but Tom will not let me. I think at this point he just wants to stay out of the doctors offices for a while and I can't blame him.
All in all this was a good appointment. Now we can spend the next months just worrying about "normal" life things; kids, bills, school, jobs. We still are taking one day at a time and not taking life for granted. I am trying to focus on what is written in I Corinthians 14:1 "Let love be your greatest aim"
We discussed the plan for 2009. In 6 months Tom will have a chest x-ray and more blood work and then meet with the Oncologist to go over the results. It appears that we will live our lives 6 months at a time. In the meantime Tom will talk with his Surgeon at the U of M about his continuing post-op difficulties. He still wakes up most mornings with swelling and difficulty breathing. Tom describes it as living everyday with a noose around his neck. He doesn't complain much but I can tell he struggles. We will head over to the U of M on April 17, and I am sure he will donate more of his blood at that time. I want to move the appointment up but Tom will not let me. I think at this point he just wants to stay out of the doctors offices for a while and I can't blame him.
All in all this was a good appointment. Now we can spend the next months just worrying about "normal" life things; kids, bills, school, jobs. We still are taking one day at a time and not taking life for granted. I am trying to focus on what is written in I Corinthians 14:1 "Let love be your greatest aim"
Monday, January 12, 2009
Winter Blast
I can wait for the winter freeze that we will be getting this week. The kids are back on the "No School" chant around the house. I will not be surprised to find more spoons under their pillows! We are just trying to get into the groove for 2009 around our house.
Tom was sick on his birthday but is doing better now. He still gets tightening of the throat when he starts to get upper respiratory issues. However, his body is fighting his cold and his breathing is getting better and will hopefully improve, especially at night. Otherwise Tom is feeling pretty good. We even worked out 2 times last week.
Well, not much else to report in the Andrew's household at this point. That is a good thing; after an 18 month battle we are getting a chance to catch our breath. Tom's next Dr. appointment is at the end of the month. We are keeping our chin up and remembering what is important; God, family, and friends.
Tom was sick on his birthday but is doing better now. He still gets tightening of the throat when he starts to get upper respiratory issues. However, his body is fighting his cold and his breathing is getting better and will hopefully improve, especially at night. Otherwise Tom is feeling pretty good. We even worked out 2 times last week.
Well, not much else to report in the Andrew's household at this point. That is a good thing; after an 18 month battle we are getting a chance to catch our breath. Tom's next Dr. appointment is at the end of the month. We are keeping our chin up and remembering what is important; God, family, and friends.
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