Whew! What a weekend. We had our first event for Relay for Life. The Euchre tournament was a success and we raised over $1,500.00! Way to go team! Tom's organizational skills came through again and he totally exhausted all his efforts for this event. Sunday he was feeling the effects of it.
Now that we can take a breath, Tom needs to focus on his own health care. He has had multiple conversation with insurance, primary doctor, and Henry Ford Hospital. There are advantages/disadvantages to both of the clinical trials that Tom has been considering. I will say again that his PCP did not hesitate to spend countless hours talking to other Cancer centers around the USA and sharing with us what he found. HFH is out of network so we are not sure how this will play out with our insurance. We are again in the stage of many questions and waiting for answers.
Last week Tom had his routine dental check up. They brought Tom a set of x-rays and sent him to see an Oral Surgeon because they found a "spot" that is of concern. It is believed that this is not an abscess as they first thought and because of Tom's history; they are asking Tom to get another opinion. Tom has a meeting with the surgeon Thursday morning.
This leads us to the question of "Where is the best place for Tom's care?" that we keep asking ourselves. Tom is feeling a little frustration and would prefer to be at one place and stay there. Today we found out that even if we get the ball rolling with HFH it will be about a month before the treatment starts. So are we on the same schedule as if we stay with Karmanos? I told Tom that it doesn't hurt to check it out and to find out about options since either way we have to wait.
Please pray for Tom. He is feeling a little out of sorts without an Oncologist. He is frustrated that things are not moving faster. This decision is weighing on his mind. I pray that God will give us a clear direction and that we continue walk along the path we have been set upon and that we do not get caught up in those things we can't control. I pray that anger and the feeling of it being unfair does not have a foothold in either of our lives.
Ephesians 5:21-22 "Now your attitudes and thoughts must all be constantly changing for the better. Yes, you must be a new and different person, holy and good. Clothe yourself with this new nature."
Monday, May 24, 2010
Sunday, May 9, 2010
Undecided
What to do?! I made a phone call to Karmanos Cancer Center this week. I was told that it will be the middle of June before I should call back. This is not a definite opening just that it will be at a stand still until that time frame. I asked about the blood work and CT's and the reply was that there is no need for those unless a there is a change in Tom's status. The phone call ended and I felt very frustrated once again!
I should however, take you back to the week before. I was talking with Tom's primary office and was told that they had not received anything from Karmanos. Once they did get the information Dr. Divic called Tom on a Thursday evening to tell Tom that his Calcitonin level dropped 300. He is in the 700 range. Dr. Divic said that he was not sure what this meant, but wanted to share this as good news.
So, today our options now are either to wait out this clinic trial opening or to return to U of M to start their regiment. Tom and I have discussed this past week which is the better option. We are uncertain which is the better path. It feels once again as if there 2 distinctly different paths and we are standing at the Y of the road. I am going to make a few more calls this upcoming week and confirm that Tom will either need to choose and can't flop between. I also will seek out from his primary, if I can, a professional opinion of which way we should go.
I wanted to share this with you so that we could once again pray for direction. Thank you to our prayer warriors that have not ceased prayers for our family. I was reminded again this week about praying without ceasing and that we give up to easily. Let us be assured that our God is in control.
Psalms 119:105 "Your words are a flashlight to light the path ahead of me, and keep me from stumbling."
I should however, take you back to the week before. I was talking with Tom's primary office and was told that they had not received anything from Karmanos. Once they did get the information Dr. Divic called Tom on a Thursday evening to tell Tom that his Calcitonin level dropped 300. He is in the 700 range. Dr. Divic said that he was not sure what this meant, but wanted to share this as good news.
So, today our options now are either to wait out this clinic trial opening or to return to U of M to start their regiment. Tom and I have discussed this past week which is the better option. We are uncertain which is the better path. It feels once again as if there 2 distinctly different paths and we are standing at the Y of the road. I am going to make a few more calls this upcoming week and confirm that Tom will either need to choose and can't flop between. I also will seek out from his primary, if I can, a professional opinion of which way we should go.
I wanted to share this with you so that we could once again pray for direction. Thank you to our prayer warriors that have not ceased prayers for our family. I was reminded again this week about praying without ceasing and that we give up to easily. Let us be assured that our God is in control.
Psalms 119:105 "Your words are a flashlight to light the path ahead of me, and keep me from stumbling."
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