We have been busy getting ready for Christmas in the Andrews family. Kid are officially off school for the Holiday Season and are all glad for the break.
Normally I would have a lot of information after our two day stay at the U of M hospital. On this trip the results from the MRI of the abdomen were not ready and Tom's Oncologist wanted to discuss the findings from the CT scans further. Tom's blood work shows some elevated levels which are effecting his blood pressure and kidney functions. This can be contributed to the Chemo and they will be making adjustment to his medications but he will remain on the same chemo dosage for now. Tom's case will be presented to the Tumor Board next week to discuss the results of is MRI and the recent activity within his bones. lungs and liver.
Tom has asked that I hold off blogging. He would like to enjoy Christmas, New Years, and his birthday without dealing with his cancer. We are going to pause and enjoy the reason for the season for now. I will have a full blog the first part of January to go over the results from the Tumor Board and how we will proceed with Tom's cancer in 2015.
Once again we want to thank everyone who helped us through this year. Your thoughts, prayers and generosity means so much to our family.
John 1:14 "And Christ became a human being and lived here on earth among us and was full of loving forgiveness and truth"
Saturday, December 20, 2014
Tuesday, November 18, 2014
Can You Handle it?
Kyle has been hard a work both for his college classes and has taken on a 2nd shift job at UPS. He leaves for work when I go to bed, it's been a little hard to sleep know that my boy is on these icy Michigan roads lately. I'm sure it's hard being a broke college student, but Tom and I try to make it as pain free as we are able. Kyle seems to enjoy this job and is very excited to take advantage of the Tuition Reimbursement next semester. Cody had his senior pictures taken & it has been hard to pick which ones to display. For a boy who never smiles for the camera we have it narrowed down to 6 (yes he is smiling in many) after much discussion and looking at them time and again. Last week Katie had her Swim Banquet and Tom and I laughed as the Team Captains gave out their own "fun" awards. She was awarded as "Most likely to ask a question" Tom and I nodded to each other and said "That's our girl, they know her well"!!! I have many times call her my mini-me, but she is not the shy teenager as her mother so painfully was.
Tom has been again having better days. His sleep pattern has still been iffy and he still needs his sleep meds to get any sleep at night. Though last night I heard him get up a lot & when I questioned him he said it was just one of those nights. He has tried to keep himself busy during the day & I appreciate all that he does for our family. He has even been in the mode of trying new recipes. Not that he is eating them, but he prepares them for his family. I tell him when he gets a taste for something to eat it. Sometimes it takes a couple of bites and he's done, but it sure does beat cereal or ensure drinks all the time. Tom even felt up to deer hunting again. Though he does not hunt as in years before cancer, he was able to enjoy mother nature and took two deer. It is good to see him looking forward to things such as this and a big thanks to Alex for being able to be out there with him.
Medically speaking the U of M did confirm that they received his MRI, but they will wait until the December visit to get the results of his liver legions. Tom's PCP called yesterday to say that the Radiologist in GR looked over his MRI and stated that they compared past and present scans and though all the legions are still present, it appears to be stable. As he is feeling better I would not want them to up his dosage and have Tom go back to a lesser quality of life unless absolutely necessary. We both know that his team of doctors will do what is best for Tom's quantity/quality of life.
Over the past years there have been many people who give us the cliche sayings and and I know that they have meant the best by it. I have also heard others show a little frustration about the same saying as it is not comforting to them. The one that comes to mind is that "God will never give you more than you can bear" I hear that and think positively. My faith states that He brings us to it and will lead us through it & to me is it comforting to hear. I think that anything in life is done by design (whether we understand it or not is another matter). Some people crumble under trying circumstances and some people turn to other things (can be substances) when they are having a hard time in life. I have always turned to the one I know with certainty will help me through a trial just like He does through the good times (when I am less likely to call on him). Sometimes we make it through with little scarring and other times we wonder how we made it at all. The question is not whether someone will have highs and lows in life because we all do. The question is how is one going to handle it?
There are so many verses that I want to post, but this is the one I chose for this time:
Hebrews 12:12-13 "So take a new grip with your tired hands, stand firm on your shaky legs, and mark out a straight, smooth path for you feet so that those who follow you, though week and lame, will not fall and hurt themselves, but become strong."
Tom has been again having better days. His sleep pattern has still been iffy and he still needs his sleep meds to get any sleep at night. Though last night I heard him get up a lot & when I questioned him he said it was just one of those nights. He has tried to keep himself busy during the day & I appreciate all that he does for our family. He has even been in the mode of trying new recipes. Not that he is eating them, but he prepares them for his family. I tell him when he gets a taste for something to eat it. Sometimes it takes a couple of bites and he's done, but it sure does beat cereal or ensure drinks all the time. Tom even felt up to deer hunting again. Though he does not hunt as in years before cancer, he was able to enjoy mother nature and took two deer. It is good to see him looking forward to things such as this and a big thanks to Alex for being able to be out there with him.
Medically speaking the U of M did confirm that they received his MRI, but they will wait until the December visit to get the results of his liver legions. Tom's PCP called yesterday to say that the Radiologist in GR looked over his MRI and stated that they compared past and present scans and though all the legions are still present, it appears to be stable. As he is feeling better I would not want them to up his dosage and have Tom go back to a lesser quality of life unless absolutely necessary. We both know that his team of doctors will do what is best for Tom's quantity/quality of life.
Over the past years there have been many people who give us the cliche sayings and and I know that they have meant the best by it. I have also heard others show a little frustration about the same saying as it is not comforting to them. The one that comes to mind is that "God will never give you more than you can bear" I hear that and think positively. My faith states that He brings us to it and will lead us through it & to me is it comforting to hear. I think that anything in life is done by design (whether we understand it or not is another matter). Some people crumble under trying circumstances and some people turn to other things (can be substances) when they are having a hard time in life. I have always turned to the one I know with certainty will help me through a trial just like He does through the good times (when I am less likely to call on him). Sometimes we make it through with little scarring and other times we wonder how we made it at all. The question is not whether someone will have highs and lows in life because we all do. The question is how is one going to handle it?
There are so many verses that I want to post, but this is the one I chose for this time:
Hebrews 12:12-13 "So take a new grip with your tired hands, stand firm on your shaky legs, and mark out a straight, smooth path for you feet so that those who follow you, though week and lame, will not fall and hurt themselves, but become strong."
Saturday, October 18, 2014
The Beauty of the Season
Fall sports are coming to an end. Last night was bitter sweet as Tom and I walked Cody for the last time down the track to the field. It has rained for parents night for the past three years so why did we expect it to be any different last night? I ditched my umbrella and took Cody's arm as our names were announced. I was all teary eyed all day thinking about this, but when the time came I felt fortunate to be able to walk with Cody and his dad for one last recognition of all his hard work. Life of a parent (especially teenagers) can be challenging, but I wouldn't change it for the world. I think of how cute and fun they were as toddlers, how they have become independent young adults, and hope they have a bright and rewarding future.
Tom had his MRI last week and now I am checking in with his Doc at U of M to see the best method of getting the CD to their team. He has had more bad days lately as he is further in with his chemo. One of his greatest struggles is managing his pain, especially at night. If he takes his pain meds his mind races until the early morning hours, if he doesn't take it he is up with pain. He has tried to use a sleep aid which gives him nightmares. I am not sure which is better for him to deal with. I believe this contributes to his feeling fatigued during the day and can become a vicious cycle. He tries to keep up a good attitude and there are days that he pushes himself. However I do see him struggling a little more than he did 30 days ago.
For myself I have been told at work "Your a little quiet lately, is everything ok?" I admitted to Tom a couple of weeks ago that I am not dealing very well lately. Tom assured me that under my circumstances I am handling it very well. That is why I love this man....always my cheerleader! I find it interesting that when I am having my pity party days, someone says something that helps me to realize how blessed I really am. I truly believe it's all in ones perspective. I know that we are all allowed to have bad days and that it is a very human reaction, but I am glad that have not been stuck there. The past couple of days going to/from work I see the color on the trees and the beauty of this Earth and have to thank our creator for this world. Just like where I live we have season in life: some fill us with warmth and laughter other times we feel bare and cold. During each season we have life's lessons to learn, some we cherish and other we learn the hard way. I have decided to enjoy this season to the best of my ability.
Ecclesiastes 5:20 "To enjoy your work and to accept your lot in life - that is indeed a gift from God. The person who does that will not need to look back with sorrow on his past, for God gives him joy."
Tom had his MRI last week and now I am checking in with his Doc at U of M to see the best method of getting the CD to their team. He has had more bad days lately as he is further in with his chemo. One of his greatest struggles is managing his pain, especially at night. If he takes his pain meds his mind races until the early morning hours, if he doesn't take it he is up with pain. He has tried to use a sleep aid which gives him nightmares. I am not sure which is better for him to deal with. I believe this contributes to his feeling fatigued during the day and can become a vicious cycle. He tries to keep up a good attitude and there are days that he pushes himself. However I do see him struggling a little more than he did 30 days ago.
For myself I have been told at work "Your a little quiet lately, is everything ok?" I admitted to Tom a couple of weeks ago that I am not dealing very well lately. Tom assured me that under my circumstances I am handling it very well. That is why I love this man....always my cheerleader! I find it interesting that when I am having my pity party days, someone says something that helps me to realize how blessed I really am. I truly believe it's all in ones perspective. I know that we are all allowed to have bad days and that it is a very human reaction, but I am glad that have not been stuck there. The past couple of days going to/from work I see the color on the trees and the beauty of this Earth and have to thank our creator for this world. Just like where I live we have season in life: some fill us with warmth and laughter other times we feel bare and cold. During each season we have life's lessons to learn, some we cherish and other we learn the hard way. I have decided to enjoy this season to the best of my ability.
Ecclesiastes 5:20 "To enjoy your work and to accept your lot in life - that is indeed a gift from God. The person who does that will not need to look back with sorrow on his past, for God gives him joy."
Saturday, September 20, 2014
Understanding Cancer
I thought life couldn't get much busier...man was I wrong. Today Kyle stated when we came home from concessions again "You guys are always busy" Katie swims Tuesdays and Thursdays. This past week she did the 500 meter & I was one proud parent. Not that she did anything special as she was told by the coach that all Freshmen would have the opportunity to swim that event, but that she was told after she completed the event from coach, "Not bad for your first time" Knowing that she will have another opportunity in an event she would rather not, she took that very well :) On Tuesday Tom and I rushed around to make it to Hamilton for her meet. We were so proud that we pulled into the parking lot at 5:55, we looked at each other and said wow 5 minutes to spare. We could not believe there were not many cars in the parking lot. No matter, we found a great seat and I pulled up her meet information on my phone to see that it started at 6:30. So I told others laughingly that we spent some quality time & showed them how.....I pulled out my phone and started scrolling different apps. I got a few chuckles from that. I have been helping Tom in the indoor concessions and am getting better understanding and appreciation of volunteers past and present. It takes a lot of work to run the concessions. Cody had his first home game this Friday & Tom was not allowed into the concessions during the game as another booster member told him to "enjoy watching your son play". Though the team did not win, I am glad that Cody is getting so much playing time. They moved him around a little & I know that he doesn't want to come off the field at all. His love for the game is deep!
In between all this we took two days to go to U of M for Tom's scans and results. We arrived plenty early on Wednesday and Tom was hoping as in the past he could get his scans over a little earlier as usual. When we got to the waiting room we both realized this was not to be. It was a packed waiting room. The contrast he has to drink makes him so sick, so we went right after to check into the hotel. He did take me to a little cafe that he found last summer and we both enjoyed our dinner, but he was not up to working on concession paperwork nor did he want to sit in the hot tub or swim. I know he was feeling a little guilty about it but I reassured him that I was not expecting a vacation get away like we had in FL. Thursday we were able to see the doc and get his results. I had a little chuckle as the nurse came into the room and asked Tom how he was doing. He had a smile and said I'm feeling great. She then turned and looked at me with the (Is he telling the truth look) and said "So, how is he doing?" I had to agree this time. From either the pain meds, the mild effects from the chemo, or both he is definitely up and moving better than I have seen him in a while. I sometimes wonder if it is the direction of running the boosters that gives him an extra push to get up and started with his day. On the positive note his CT showed the spine as stable and the chest showed some decrease. The C6 & C7 in the necks also had some smaller lesions. The liver is another matter. The CT showed some small, some stable but a couple went from .8 to 1.1 and .8 to 1.4. However there was one that was at 1.3 previously that is not visible. Doctor Worden said that he wanted Tom to have an MRI so that he could have a better look as the CT is not the best scan to for measurements. He explained that the lung is a "fluffy" organ and the cancer is very obvious. The liver is a dense organ that is hard to read or examine with this scan. Tom was given MRI orders to take back to Grand Rapids as a base-line. In December when he goes to U of M they will make the comparison and see a clearer picture of what the liver is doing. Another concern is the CEA level is up and this is an indicator that the cancer is doing something.
On the way out the door I picked up the Thrive magazine. This is a magazine that is published a few times a year from the University of Michigan Comprehensive Cancer Center. I flipped it to the article that was titled Understanding Cancer Recurrence. Though I think I get what this means I am not sure those who have not been through this either themselves or with a loved ones comprehends this disease, especially when it's rare and not curable. It stated: If the cancer is detected in surrounding lymph nodes to the original location, it is a regional recurrence. If the cancer has spread to distant parts of the body it is called metastatic recurrence. metastasis cancer is also called stage 4. Advances in treatment allow us to manage cancer symptoms and shrink cancerous tumors, but metastatic cancer is rarely curable. The goal for treating a spread cancer is to reduce tumor size and relieve some of the symptoms that the patients experience. this allows us to prolong an individual's life and, in many cases, allows a person to live a high-quality life.
I think in the past some people have been under the impression that stable means the same as in remission or that something was missed as the cancer has not been stopped. Unfortunately that is not the case. Though Tom and the cancer team stay positive we know that the focus is slowing/stopping the growth and the spread, keeping Tom comfortable with the best quality of life a cancer patient can experience. I give a great amount of respect to those who work on the cancer treatment with Tom. I appreciate the positive attitude and sympathy that is given to our visits. I know that this is a scary word in our home and that we are grateful for the days that we are given together as a family. Again I want to say thank you to all who have text, e-mailed, and asked about Tom and supported both of us. I know that sometimes I have a hard time talking about what life brings. I've even walked away from a conversation or two at work because I've been in tears with coworkers; but I DO so appreciate the concern from others. I could not do this alone. I could not accept this all without help and support. There is more than just the fear of the disease, there is Hope, Love, Joy & laughter that keeps us going daily.
Ecclesiastes 6:10 "All things are decided by fate; it was known long ago what each man would be, so there's no use arguing with God about our destiny"
In between all this we took two days to go to U of M for Tom's scans and results. We arrived plenty early on Wednesday and Tom was hoping as in the past he could get his scans over a little earlier as usual. When we got to the waiting room we both realized this was not to be. It was a packed waiting room. The contrast he has to drink makes him so sick, so we went right after to check into the hotel. He did take me to a little cafe that he found last summer and we both enjoyed our dinner, but he was not up to working on concession paperwork nor did he want to sit in the hot tub or swim. I know he was feeling a little guilty about it but I reassured him that I was not expecting a vacation get away like we had in FL. Thursday we were able to see the doc and get his results. I had a little chuckle as the nurse came into the room and asked Tom how he was doing. He had a smile and said I'm feeling great. She then turned and looked at me with the (Is he telling the truth look) and said "So, how is he doing?" I had to agree this time. From either the pain meds, the mild effects from the chemo, or both he is definitely up and moving better than I have seen him in a while. I sometimes wonder if it is the direction of running the boosters that gives him an extra push to get up and started with his day. On the positive note his CT showed the spine as stable and the chest showed some decrease. The C6 & C7 in the necks also had some smaller lesions. The liver is another matter. The CT showed some small, some stable but a couple went from .8 to 1.1 and .8 to 1.4. However there was one that was at 1.3 previously that is not visible. Doctor Worden said that he wanted Tom to have an MRI so that he could have a better look as the CT is not the best scan to for measurements. He explained that the lung is a "fluffy" organ and the cancer is very obvious. The liver is a dense organ that is hard to read or examine with this scan. Tom was given MRI orders to take back to Grand Rapids as a base-line. In December when he goes to U of M they will make the comparison and see a clearer picture of what the liver is doing. Another concern is the CEA level is up and this is an indicator that the cancer is doing something.
On the way out the door I picked up the Thrive magazine. This is a magazine that is published a few times a year from the University of Michigan Comprehensive Cancer Center. I flipped it to the article that was titled Understanding Cancer Recurrence. Though I think I get what this means I am not sure those who have not been through this either themselves or with a loved ones comprehends this disease, especially when it's rare and not curable. It stated: If the cancer is detected in surrounding lymph nodes to the original location, it is a regional recurrence. If the cancer has spread to distant parts of the body it is called metastatic recurrence. metastasis cancer is also called stage 4. Advances in treatment allow us to manage cancer symptoms and shrink cancerous tumors, but metastatic cancer is rarely curable. The goal for treating a spread cancer is to reduce tumor size and relieve some of the symptoms that the patients experience. this allows us to prolong an individual's life and, in many cases, allows a person to live a high-quality life.
I think in the past some people have been under the impression that stable means the same as in remission or that something was missed as the cancer has not been stopped. Unfortunately that is not the case. Though Tom and the cancer team stay positive we know that the focus is slowing/stopping the growth and the spread, keeping Tom comfortable with the best quality of life a cancer patient can experience. I give a great amount of respect to those who work on the cancer treatment with Tom. I appreciate the positive attitude and sympathy that is given to our visits. I know that this is a scary word in our home and that we are grateful for the days that we are given together as a family. Again I want to say thank you to all who have text, e-mailed, and asked about Tom and supported both of us. I know that sometimes I have a hard time talking about what life brings. I've even walked away from a conversation or two at work because I've been in tears with coworkers; but I DO so appreciate the concern from others. I could not do this alone. I could not accept this all without help and support. There is more than just the fear of the disease, there is Hope, Love, Joy & laughter that keeps us going daily.
Ecclesiastes 6:10 "All things are decided by fate; it was known long ago what each man would be, so there's no use arguing with God about our destiny"
Saturday, August 30, 2014
Personal Connections
The fall athletics are in full stride. Katie had her first swim meet on Thursday. Half of her team is made up of Freshman and I am excited to see how they develop. She is working hard in the water and conditioning on land. Stairs are not her friend right now. I took her through the High School open house and we followed her schedule a couple of times so that she would know where her classes were. Since I did not attend this school or help the boys I was not sure of the class locations myself and told many parents we were like the blind leading the blind. So glad she felt somewhat confident before she left. Cody had his first football game Thursday night. Though they lost to our neighbors and rivals I was glad that I came to see them in the second half. After supporting football for 11 years it's a weird feeling to know this is the final year to watch my boy. He too has been conditioning and walks the stairs a little slower than preseason. Kyle started his second year at FSU Monday. He is definitely enjoying it so far. He had to stand up in front of class and he told me it was no big deal. Gone is my shy boy and I see a confident young man...but I still lovingly call him my "little guy"
Tom has been doing well on this new chemo drug. I believe that he has had a total of 4 days thus far where he has been down and on the couch. He overall has been feeling better than he had for years. It has been good to see him up and motivated again. He has been keeping himself busy as the President of the Boosters. As many of you know he is an organizer, likes to have structure, and is working hard on getting the "We want you" word out. For the past month he has been working on the concession stand lay outs and changing how the prep stations flows. In the past week his food orders have come in and he has been putting them away....it's been hard work & his has come home exhausted. Though sometimes I worry about him getting too exhausted, I am glad he has a focus and purpose in his day. He is looking forward to Tuesday when he truly has the house to himself. I on the other hand will have to share the kitchen with the kids. Let the new routine begin! Next month Tom and I will head back to Michigan for scans and results. Tom and I hope that the Chemo is doing its job & that he does not have to up the dosage.
I have been writing out the versus I have underlined in my Bible for the past months. It has been interesting to remember why I decided to underline & what I still find as profound this next walk through. Sometimes I can remember what I was thinking or how that particular verse hit me when I underlined. In this same book is my ever growing list of who I am praying for, when I started praying and sometimes what in particular I was focusing on for that person. Some have been answered and I also have an end date. One day as I was looking over my multiple pages I noticed that so many of my requests were about relationships. It struck me of how important relations are...how we strive, struggle, or sometimes decide to let go. Each person I believe is placed into our lives not by chance, but by design. I know that life can feel great, be a struggle, or just exhausting. A few years ago I felt so alone after loosing my brother. I know that I was not and I could reason that I had so many friends and those who supported me; but I couldn't shake the feeling. Then one day I realized that no matter who was in my life (and they do matter) that I had one that could never leave me. My relationship with Him surpassed all others. He is one that will never leave my side & so many things just felt better. I hope that whatever life throws to you; You are NEVER ALONE!
Isaiah 50:4 "Morning by morning he wakens me and open my understanding to his will"
Tom has been doing well on this new chemo drug. I believe that he has had a total of 4 days thus far where he has been down and on the couch. He overall has been feeling better than he had for years. It has been good to see him up and motivated again. He has been keeping himself busy as the President of the Boosters. As many of you know he is an organizer, likes to have structure, and is working hard on getting the "We want you" word out. For the past month he has been working on the concession stand lay outs and changing how the prep stations flows. In the past week his food orders have come in and he has been putting them away....it's been hard work & his has come home exhausted. Though sometimes I worry about him getting too exhausted, I am glad he has a focus and purpose in his day. He is looking forward to Tuesday when he truly has the house to himself. I on the other hand will have to share the kitchen with the kids. Let the new routine begin! Next month Tom and I will head back to Michigan for scans and results. Tom and I hope that the Chemo is doing its job & that he does not have to up the dosage.
I have been writing out the versus I have underlined in my Bible for the past months. It has been interesting to remember why I decided to underline & what I still find as profound this next walk through. Sometimes I can remember what I was thinking or how that particular verse hit me when I underlined. In this same book is my ever growing list of who I am praying for, when I started praying and sometimes what in particular I was focusing on for that person. Some have been answered and I also have an end date. One day as I was looking over my multiple pages I noticed that so many of my requests were about relationships. It struck me of how important relations are...how we strive, struggle, or sometimes decide to let go. Each person I believe is placed into our lives not by chance, but by design. I know that life can feel great, be a struggle, or just exhausting. A few years ago I felt so alone after loosing my brother. I know that I was not and I could reason that I had so many friends and those who supported me; but I couldn't shake the feeling. Then one day I realized that no matter who was in my life (and they do matter) that I had one that could never leave me. My relationship with Him surpassed all others. He is one that will never leave my side & so many things just felt better. I hope that whatever life throws to you; You are NEVER ALONE!
Isaiah 50:4 "Morning by morning he wakens me and open my understanding to his will"
Monday, July 21, 2014
New Chemo....are we having fun yet?
As always...lets talk about the family. We've had Kyle home for the last three weeks do to his plant shut down & and he just went back to work today. It was nice having him home & he was still able to pay his next semester at FSU, good job Kyle! Hopefully they will keep him busy for the remainder of his summer. Cody is conditioning and participating in the 7/7 football games. I've had a great time watching him. It's bitter sweet knowing this will be his last year playing football. Tom and I keep singing to him "Hard work,work" I'm not sure how much he appreciates it :) Katie finished up her AcquatiCATS swim with a Conference swim in Rockford. She beat her all-time 100 Freestyle record and on the drive home was very happy/chatty. Katie was also able to go to Son-Life camp and she came back all smiles saying that she had an amazing time! Before we blink we'll be in the full fall sport schedule.
Two weeks ago Tom started his new chemo pill. Out of the last 14 days he has one "bad day" where the effects took their toll. For the most part he is up and about as much as he was pre~chemo. He is keeping to his one meal a day and supplementing the others with an Ensure if he is able. They started Tom at the lowest dose and depending on how he handles it and the scan he can go up three higher doses. He also had his monthly check up here in GR last Friday. As always his trip is eventful to say the least. Tom was telling them that the blood work orders were changed with the new drug regulations, glad they finally listened as they would have had to poke him twice. Once they looked over the orders again it was admitted that he was right. As Tom was getting his Zometa infusion the fire alarm went off. Tom had to trek down the stair, infusion still in hand, and wait for the fire trucks to put out the flames. Poor guy, nothing at that facility has gone smoothly from his first visit. He will have another visit next month here in GR and then I will be going with Tom to his next U of M visit mid September.
In the past two weekends we have had two family reunions the Andrews & Van Dyke sides. I can't wait to see the group pictures. It has been great to see the families again & catch up with what is going on in life. I had to smile when both families said they still enjoy reading this blog...thanks for the compliments. I have admitted to the masses that I ramble, and I wanted to thank my editor for keeping me on track. Thanks Tommy! For the rest of the summer we've just floated/splashed away & I am looking forward to some more weekends to enjoy our pool.
Psalm 35:10 From the bottom of my heart praises rise to him.
Two weeks ago Tom started his new chemo pill. Out of the last 14 days he has one "bad day" where the effects took their toll. For the most part he is up and about as much as he was pre~chemo. He is keeping to his one meal a day and supplementing the others with an Ensure if he is able. They started Tom at the lowest dose and depending on how he handles it and the scan he can go up three higher doses. He also had his monthly check up here in GR last Friday. As always his trip is eventful to say the least. Tom was telling them that the blood work orders were changed with the new drug regulations, glad they finally listened as they would have had to poke him twice. Once they looked over the orders again it was admitted that he was right. As Tom was getting his Zometa infusion the fire alarm went off. Tom had to trek down the stair, infusion still in hand, and wait for the fire trucks to put out the flames. Poor guy, nothing at that facility has gone smoothly from his first visit. He will have another visit next month here in GR and then I will be going with Tom to his next U of M visit mid September.
In the past two weekends we have had two family reunions the Andrews & Van Dyke sides. I can't wait to see the group pictures. It has been great to see the families again & catch up with what is going on in life. I had to smile when both families said they still enjoy reading this blog...thanks for the compliments. I have admitted to the masses that I ramble, and I wanted to thank my editor for keeping me on track. Thanks Tommy! For the rest of the summer we've just floated/splashed away & I am looking forward to some more weekends to enjoy our pool.
Psalm 35:10 From the bottom of my heart praises rise to him.
Friday, June 20, 2014
Life Goals
School is officially done for 2014...yeah! Kyle is working 2nd shift and it's been weird only seeing him on the weekends. Cody came home from his football camp at the U of M and will be working on conditioning for the rest of the summer. Football, hard work work! He has enjoyed driving his dad's truck.....now to find a job to pay for all the gas he's using. He is growing up & becoming responsible (ready or not)! Katie is in the middle of her Summer swim club & just enjoying the slower pace for a while.
Tom and I, well we had a great 25th wedding anniversary. We spent Memorial weekend in sunny & hot Clearwater Beach FL. We sat pool side or walked the beach during the days. The hotel always had different activities going on around the pool and the first day we were asked if anyone was celebrating a birthday or anniversary I piped up and said we were here for our 25th. A little while later we were packing up to leave the pool when an announcement was made that there was a special dance for a couple celebrating 25 years. We were brought to the "dance floor" and the song "My Girl" started. I am not one for attention but was laughing as my husband teased me again for having to take the lead. We received a few congrats from the guests after the song was done & didn't think anymore about it. However the next day a hors d'oeuvres tray and a bottle of wine was brought to our room. Yummy and worth the couple of minutes of fame :) We also found some fabulous Dinner & Dives to eat at & enjoyed several beautiful sunsets. The last night while we were on the pier watching the boats, fish, and sunset we happened to spot a couple of dolphins. Tom tried to get a picture but it was not that easy and he snapped a pic of a couple of fins. However, to see two, then three, then five dolphins all come up for air was an awesome view. What a wonderful way to celebrate our lives together and before we knew it we were on a plane back to MI. Thank you babe for those carefree and fun memories!
Last Sunday was Father's Day and what a better way for Tom to spend the day than to head to U of M for football camp with his son. This time he stayed for the entire week. Tom had his scans very early Monday morning and lab work on Wednesday, then the rest of the week was spent resting or following Cody around camp. He didn't just sit up in the bleachers though, Cody had him on the field watching up close. Tom so enjoyed this time and it was good for both of them to bond and follow their passion together. Thursday afternoon the closing ceremony topped off the end of camp and they headed to the hospital to find the results from Tom's scans. Tom has been having rib & other pains. Doc put him on stronger narcotics to block the pain, five new prescriptions later he will hopefully be getting some relief soon. His scan showed that his neck was stable, however his liver had 3 legions that had increased in size as well as a couple in his lungs. Though the growth was not at an alarming rate it was decided that he should go back onto a new chemo. He will be monitored closely on this drug and will need to have monthly EKG and labs done. He will be seeing an Oncologist here in GR and I am glad we don't have to make monthly treks across the state. The differences of this chemo and the last will not differ that much; with the biggest difference in that he can start on a lowest dosage and work his way up if need be.
Tom will head back to the U of M again in September for his quarterly scans. Until then he will try to keep his appetite up (he's eating 2 meals a day consistently right now). He has a good attitude about his current state and is accepting beginning this new treatment. He still has a lot of days that he spends on the couch, but he keeps his spirits up and has a grateful attitude of being here. On our way to one of our many open houses he stated again that his goal is to see all of his children graduate from High School. I said, "Once that's done we will talk about your next set of goals"
In this past half year we've had to say goodbye to people we've cared about, celebrated with those who have made accomplished goals, prayed over those who have had trials, and been awed by those precious new little lives. I have had many deep conversations about life & what matters in the big pictures as I've shared my own trials and listed to others. Isn't that what we're supposed to do? I am not saying that I have any big ideas or answers but sometimes I've been lead to share somethings that are very personal to me & that I would usually keep to myself. It has been an uplifting experience & helped me to confirm that there is so much to this life & beyond that we just can't fathom!
Psalms 105:14 but through it all he would not let one thing be done to them apart from his decision
Tom and I, well we had a great 25th wedding anniversary. We spent Memorial weekend in sunny & hot Clearwater Beach FL. We sat pool side or walked the beach during the days. The hotel always had different activities going on around the pool and the first day we were asked if anyone was celebrating a birthday or anniversary I piped up and said we were here for our 25th. A little while later we were packing up to leave the pool when an announcement was made that there was a special dance for a couple celebrating 25 years. We were brought to the "dance floor" and the song "My Girl" started. I am not one for attention but was laughing as my husband teased me again for having to take the lead. We received a few congrats from the guests after the song was done & didn't think anymore about it. However the next day a hors d'oeuvres tray and a bottle of wine was brought to our room. Yummy and worth the couple of minutes of fame :) We also found some fabulous Dinner & Dives to eat at & enjoyed several beautiful sunsets. The last night while we were on the pier watching the boats, fish, and sunset we happened to spot a couple of dolphins. Tom tried to get a picture but it was not that easy and he snapped a pic of a couple of fins. However, to see two, then three, then five dolphins all come up for air was an awesome view. What a wonderful way to celebrate our lives together and before we knew it we were on a plane back to MI. Thank you babe for those carefree and fun memories!
Last Sunday was Father's Day and what a better way for Tom to spend the day than to head to U of M for football camp with his son. This time he stayed for the entire week. Tom had his scans very early Monday morning and lab work on Wednesday, then the rest of the week was spent resting or following Cody around camp. He didn't just sit up in the bleachers though, Cody had him on the field watching up close. Tom so enjoyed this time and it was good for both of them to bond and follow their passion together. Thursday afternoon the closing ceremony topped off the end of camp and they headed to the hospital to find the results from Tom's scans. Tom has been having rib & other pains. Doc put him on stronger narcotics to block the pain, five new prescriptions later he will hopefully be getting some relief soon. His scan showed that his neck was stable, however his liver had 3 legions that had increased in size as well as a couple in his lungs. Though the growth was not at an alarming rate it was decided that he should go back onto a new chemo. He will be monitored closely on this drug and will need to have monthly EKG and labs done. He will be seeing an Oncologist here in GR and I am glad we don't have to make monthly treks across the state. The differences of this chemo and the last will not differ that much; with the biggest difference in that he can start on a lowest dosage and work his way up if need be.
Tom will head back to the U of M again in September for his quarterly scans. Until then he will try to keep his appetite up (he's eating 2 meals a day consistently right now). He has a good attitude about his current state and is accepting beginning this new treatment. He still has a lot of days that he spends on the couch, but he keeps his spirits up and has a grateful attitude of being here. On our way to one of our many open houses he stated again that his goal is to see all of his children graduate from High School. I said, "Once that's done we will talk about your next set of goals"
In this past half year we've had to say goodbye to people we've cared about, celebrated with those who have made accomplished goals, prayed over those who have had trials, and been awed by those precious new little lives. I have had many deep conversations about life & what matters in the big pictures as I've shared my own trials and listed to others. Isn't that what we're supposed to do? I am not saying that I have any big ideas or answers but sometimes I've been lead to share somethings that are very personal to me & that I would usually keep to myself. It has been an uplifting experience & helped me to confirm that there is so much to this life & beyond that we just can't fathom!
Psalms 105:14 but through it all he would not let one thing be done to them apart from his decision
Sunday, May 18, 2014
Marriage ~ What an adventure
Most of the time I start these blogs with how the kids are doing....I don't want to skip this part. Kyle finished his first year of college & is now working summer help at a factory in Holland. Hopefully he can make enough money so that next year he can just concentrate on his studies. Cody and Katie are finishing up school & the count down has begun for them both. As of this week I reminded Cody that he is "top dog" at school for a year. Katie is getting ready to move over to high school. Man, my babies are growing up fast!
Katie and I were both able to tour Washington DC with some of the students from her Middle School. What a whirlwind tour & so much history that we learned about. The buses traveled to/from during the night giving us 3 days to see all that we could. We were up @ 6:00 every morning & going until past 11:00 pm. By the end of the week we were back home & I was one tired mama! I teased my mother about the idea of "seeing all that we could see" & the high velocity of travel reminded me of our family vacations from my youth. I wanted to take a minute to thank those people ~ you know who you are ~ for helping to pay my way for this trip. It was not cheep & we appreciate the generosity of those who donated to the Andrews.
Tom has been struggling with his gurgling stomach and pain throughout his body. This keeps him up at night & he has seen many 3:00 am's in a row. This has also effected his energy level & sometime makes him grumpy. I couldn't imagine living daily with chronic pain. His attitude still amazes me & he has a lot of "fight" left to give. Tom had given his official letter of resignation to Wayland Area EMS. Though it was a hard decision for him to make, he realized a while ago that he could no longer physically do the job. He received a wonderful "Thank you" for his years of service from the service along with many touching posts on Facebook. I was in DC when these post came through, maybe I was a little on the tired side, but each post made me cry a little harder as I read them. During his years of service I was proud of him when he chose to work the weekends/holidays, to be there for others in their time of need.
Last night as Tom was in pain & couldn't sleep we were talked to way after midnight about our dreams of our past, our hopes for our future, and just life and how we choose to live. Our lives are both so far from perfect but we keeping striving to make the right choice & be the best that we can be. We do have another mile stone in the Andrews family. On May 20 Tom and I will be celebrating our 25 wedding anniversary. I still wonder "where did the time go?" We are both looking forward to our get away this coming week to celebrate our lives side by side. When I look back I think of how I would do things differently, but I know that I would not miss our lives together for anything! In talking with one of Tom's doctors years ago it was stated that 60% of terminal patients end in divorce and I told him "I take the for better for worse, for richer or poorer, in sickness & in health, until death do us part very seriously". So I hang onto our bumpy ride called life & love the man I gave my hand in marriage to. Love you babe forever!
1 Corinthians 11:3 "But there is one matter I want to remind you about; that a wife is responsible to her husband, her husband is responsible to Christ, and Christ is responsible to God."
Katie and I were both able to tour Washington DC with some of the students from her Middle School. What a whirlwind tour & so much history that we learned about. The buses traveled to/from during the night giving us 3 days to see all that we could. We were up @ 6:00 every morning & going until past 11:00 pm. By the end of the week we were back home & I was one tired mama! I teased my mother about the idea of "seeing all that we could see" & the high velocity of travel reminded me of our family vacations from my youth. I wanted to take a minute to thank those people ~ you know who you are ~ for helping to pay my way for this trip. It was not cheep & we appreciate the generosity of those who donated to the Andrews.
Tom has been struggling with his gurgling stomach and pain throughout his body. This keeps him up at night & he has seen many 3:00 am's in a row. This has also effected his energy level & sometime makes him grumpy. I couldn't imagine living daily with chronic pain. His attitude still amazes me & he has a lot of "fight" left to give. Tom had given his official letter of resignation to Wayland Area EMS. Though it was a hard decision for him to make, he realized a while ago that he could no longer physically do the job. He received a wonderful "Thank you" for his years of service from the service along with many touching posts on Facebook. I was in DC when these post came through, maybe I was a little on the tired side, but each post made me cry a little harder as I read them. During his years of service I was proud of him when he chose to work the weekends/holidays, to be there for others in their time of need.
Last night as Tom was in pain & couldn't sleep we were talked to way after midnight about our dreams of our past, our hopes for our future, and just life and how we choose to live. Our lives are both so far from perfect but we keeping striving to make the right choice & be the best that we can be. We do have another mile stone in the Andrews family. On May 20 Tom and I will be celebrating our 25 wedding anniversary. I still wonder "where did the time go?" We are both looking forward to our get away this coming week to celebrate our lives side by side. When I look back I think of how I would do things differently, but I know that I would not miss our lives together for anything! In talking with one of Tom's doctors years ago it was stated that 60% of terminal patients end in divorce and I told him "I take the for better for worse, for richer or poorer, in sickness & in health, until death do us part very seriously". So I hang onto our bumpy ride called life & love the man I gave my hand in marriage to. Love you babe forever!
1 Corinthians 11:3 "But there is one matter I want to remind you about; that a wife is responsible to her husband, her husband is responsible to Christ, and Christ is responsible to God."
Sunday, April 6, 2014
Easter Season
Spring is here! So glad to see the sunshine and that most of the snow has disappeared. We have hit the 50's a few times & I am looking forward to the constant warming temps (hopefully in our near future). The younger two are on Spring Break and though I will be working and we are not going away; Tom has a few things planned for the kids to do. Kyle will be working 45 hours and still has his college courses. Though I know that Kyle's not particularly looking forward to this week, it's only for a week.
Tom completed his 10 radiation treatments about 2 weeks ago. Even though he had a mouth guard to stop the radiation from bouncing around from his fillings, he still ended up with mouth sores. This has again prevented him from eating the meals he so started to enjoy. Along with the mouth sores Tom also has fatigue which is typical with the treatment has really drained him. It is nice to see him up and about when the sun is shining as it has been good for his spirits! Tom was able to be at Plainwell Schools to talk with the high school students about careers in Healthcare last week. I know how much he loved being a Polysomnographic Tech and was glad he could share his experience. Other than having an infusion, Tom does not have anything medical until June. He was able to work it out so that he could be at the U of M the same week that Cody will be in Football camp. I know that they are both looking forward to this week as this will be Cody's last experience at The Big House.
We had a fun night and a successful Cancer Suck Euchre Tournament. Though I was not even close to being a winner I had a great time. We had so many people helping us either with donations OR volunteers to run the different programs that night. I know that Tom was worn out by the end of the evening but he would not sit down much and pushed himself. We are so grateful for what everyone did to help our family...THANK YOU!
This year I did not give up Chocolates or desserts as I have int he past. Instead I have been working on "saying nice things" as I have a post-it on my work computer. It matters how we think, what we say, and how we say it. It's all in the attitude. I am not by nature a positive person so I need to train my head/heart in this way. This is Lent season and I can't think of a better time to start being positive as we have so much to be grateful for. I have been contemplating about sharing this moment for a week now, but feel that I should share it. One night Tom and I were talking about our past, the good times we had and where our family was headed until we heard the life changing words (You have Cancer). We were sharing the "Why do you love me" with each other. I ask him why and he said "Because you stayed with me"
1 Peter 1:3-7 "Now we live in the hope of eternal life because Christ rose again from the dead. And God has reserved for his children the priceless gift of eternal life; it is kept in heaven for you, pure and undefiled, beyond the reach of change and decay. And God, in his mighty power will make sure that you get there safely to receive it, because you are trusting in him. It will be ours in that coming last day for all to see. So be truly glad! There is a wonderful joy ahead, even though the going is rough for a while down here. These trial are only to test your faith, to see whether or not it is strong and pure.
Tom completed his 10 radiation treatments about 2 weeks ago. Even though he had a mouth guard to stop the radiation from bouncing around from his fillings, he still ended up with mouth sores. This has again prevented him from eating the meals he so started to enjoy. Along with the mouth sores Tom also has fatigue which is typical with the treatment has really drained him. It is nice to see him up and about when the sun is shining as it has been good for his spirits! Tom was able to be at Plainwell Schools to talk with the high school students about careers in Healthcare last week. I know how much he loved being a Polysomnographic Tech and was glad he could share his experience. Other than having an infusion, Tom does not have anything medical until June. He was able to work it out so that he could be at the U of M the same week that Cody will be in Football camp. I know that they are both looking forward to this week as this will be Cody's last experience at The Big House.
We had a fun night and a successful Cancer Suck Euchre Tournament. Though I was not even close to being a winner I had a great time. We had so many people helping us either with donations OR volunteers to run the different programs that night. I know that Tom was worn out by the end of the evening but he would not sit down much and pushed himself. We are so grateful for what everyone did to help our family...THANK YOU!
This year I did not give up Chocolates or desserts as I have int he past. Instead I have been working on "saying nice things" as I have a post-it on my work computer. It matters how we think, what we say, and how we say it. It's all in the attitude. I am not by nature a positive person so I need to train my head/heart in this way. This is Lent season and I can't think of a better time to start being positive as we have so much to be grateful for. I have been contemplating about sharing this moment for a week now, but feel that I should share it. One night Tom and I were talking about our past, the good times we had and where our family was headed until we heard the life changing words (You have Cancer). We were sharing the "Why do you love me" with each other. I ask him why and he said "Because you stayed with me"
1 Peter 1:3-7 "Now we live in the hope of eternal life because Christ rose again from the dead. And God has reserved for his children the priceless gift of eternal life; it is kept in heaven for you, pure and undefiled, beyond the reach of change and decay. And God, in his mighty power will make sure that you get there safely to receive it, because you are trusting in him. It will be ours in that coming last day for all to see. So be truly glad! There is a wonderful joy ahead, even though the going is rough for a while down here. These trial are only to test your faith, to see whether or not it is strong and pure.
Sunday, March 9, 2014
You're Choice
Can you say Spring? Not yet! However, we are getting a little warmer each week. Hopefully by the end of this week we will be able to see over the piles of snow at the intersections. We have finally slowed down in the Andrews' household at least in some respects. Cody will have his wrestling banquet this week and that will end his sporting events for his Junior year. Cody & Tom also went on the annual Salem Rabbit Hunt. With the snow so deep they did not kick up anything & it was a challenge to walk though the fields that they hunt. Autumn (a hunting dog) was not able to kick up any either. It was a tough day. Though they were not successful I know that Tom was glad to have this opportunity to spend with Cody. Kyle is getting ready and saving up for his next semester. I can't believe he is finishing up his first year of college. Where has the time gone? He stays busy with working & school these days. Katie just recently had her birthday & while we attended a Grand Rapids Griffins Hockey game, which was so fun, she saw an ad for Skillet. She made the comment "I'd like go see them" I told Tom and a week later we went, what a riot! Katie, her friend Sam & myself had a fun night. This old lady still loves to rock :)
Tom in the meantime spends most of his day trying to ease the pain caused by his cancer. The tumor in this neck is causing him discomfort, but this seems to be the least of this list of issues. He had a needle biopsy that confirmed the cancer around his carotid artery and gland is Medullary Thyroid Cancer, which is reported as a good thing. He is able to do his 10 rounds of radiation here at the U of M Cancer treatment in Grand Rapids. Tom has a face mask along with a mouth guard that is hard for him to wear during the 15 minute treatment. The doctor is also concerned about further damaging his salivary glands. His stomach gurgling has not yet been mastered by the prescriptions he has been put on. However, he is eating better than he has in a year & he has gained 10 pounds since his last visit. Tom will head back to the U of M in June for scans & doctors appointment. At this time we will again discuss whether it would be beneficial for Tom to go onto Chemo.
This weekend we are having our 5th Annual Cancer Sucks Euchre tournament. Typically we use this as a fund raiser for our Relay team. This year our team told us that the money is being raised to help our family with expenses. It is very strange not to be organizing this event and to hand over our stuff to others to put it on. I know that the team will do a wonderful job. I am grateful to our framily (friends like family) who are putting this together. I am excited to be able to participate this year. Watch out players I hold the title of Euchre Queen and hope to be a contender!
Seriously I would like to share that these days have not always been easy. I look back at how our lives have changed and how it affects the kids in what they do & what we do as a family. We spend time watching movies & doing low key events as Tom does not have the energy to go at a fast pace. I worry about how we are all handling this disease emotionally & spiritually. Mostly I wonder about when we look back at these days how we've conducted ourselves. Are we doing what we are meant to? It's kind of like what I have told the kids at different times in their lives. Your brother/sister can upset you & you can't always do something about it, but you can choose how you are going to handle it. I know that I took for granted our family, health, & so much in life...yes I complained about the little things like we all do. Now I look back at the last 6 years and see how I've handled things differently with a changed view. I sometimes miss those carefree days & know that we can't go back to them. It's not that I am complaining about today because I cherish them more than I did when we were healthy. I make the best of each day & choose to be grateful for my family right here & now. I hope that you also decide to be peaceful in the situation you find yourself in....either way it's your choice.
Ephesians 4:23 "Now your attitude and thoughts must all be constantly changing for the better."
Tom in the meantime spends most of his day trying to ease the pain caused by his cancer. The tumor in this neck is causing him discomfort, but this seems to be the least of this list of issues. He had a needle biopsy that confirmed the cancer around his carotid artery and gland is Medullary Thyroid Cancer, which is reported as a good thing. He is able to do his 10 rounds of radiation here at the U of M Cancer treatment in Grand Rapids. Tom has a face mask along with a mouth guard that is hard for him to wear during the 15 minute treatment. The doctor is also concerned about further damaging his salivary glands. His stomach gurgling has not yet been mastered by the prescriptions he has been put on. However, he is eating better than he has in a year & he has gained 10 pounds since his last visit. Tom will head back to the U of M in June for scans & doctors appointment. At this time we will again discuss whether it would be beneficial for Tom to go onto Chemo.
This weekend we are having our 5th Annual Cancer Sucks Euchre tournament. Typically we use this as a fund raiser for our Relay team. This year our team told us that the money is being raised to help our family with expenses. It is very strange not to be organizing this event and to hand over our stuff to others to put it on. I know that the team will do a wonderful job. I am grateful to our framily (friends like family) who are putting this together. I am excited to be able to participate this year. Watch out players I hold the title of Euchre Queen and hope to be a contender!
Seriously I would like to share that these days have not always been easy. I look back at how our lives have changed and how it affects the kids in what they do & what we do as a family. We spend time watching movies & doing low key events as Tom does not have the energy to go at a fast pace. I worry about how we are all handling this disease emotionally & spiritually. Mostly I wonder about when we look back at these days how we've conducted ourselves. Are we doing what we are meant to? It's kind of like what I have told the kids at different times in their lives. Your brother/sister can upset you & you can't always do something about it, but you can choose how you are going to handle it. I know that I took for granted our family, health, & so much in life...yes I complained about the little things like we all do. Now I look back at the last 6 years and see how I've handled things differently with a changed view. I sometimes miss those carefree days & know that we can't go back to them. It's not that I am complaining about today because I cherish them more than I did when we were healthy. I make the best of each day & choose to be grateful for my family right here & now. I hope that you also decide to be peaceful in the situation you find yourself in....either way it's your choice.
Ephesians 4:23 "Now your attitude and thoughts must all be constantly changing for the better."
Saturday, February 1, 2014
Winter
Earlier this week Michigan was hit with weather that people are comparing to the storm of '78. It has been brutal in the midwest. Other southern states are getting a taste of mother nature as well. She has not let up in many states and the thing I've been hearing the most no matter where we've been is "I'm so done with winter" Maybe so, but we're still mid season with no sign of Spring!
On Monday I somehow made it to work, even though every rational thought in my mind was to go back home & hybernate until April! I came home early that day & told Tom that this is the worst driving weather in about 20 years. Despite the forecast we still decided to make the trip to AA the following morning. I was supposed to work in the am and we were going to be on the road by noon. Instead we left earlier than planned and hit the frozen tundra by 10 am. It was a scary drive until about Jackson & at one point Tom said "Maybe we should have cancelled" We made it and I was glad that we did not have to leave the hospital as we were able to stay at the Med Inn (a hotel attached to the hospital) until the following day.
Tom had his scans on Tuesday and as always, he was very sick well into the night. The next mornig Tom had his blood draw & then onto the doc's to talk about the results. Tom has gained 5 pounds which is a result of him eating 3 meals a day. They are not full meals that the average person would consume, but he is eating much more than last November when he lost 30 pounds in such a short period. There was discussion about Tom's stomache issues and his loud gurgling. He has been put on a combination of meds and narcotics to see if this will help. Dr. said that it is due to his Calcitonin levels being so high. I'm not sure the number anymore & I didn't ask because I'm not sure I really want to know. His bones again are stable & head scan came back clean. However their is a "bulk" on his right carotid gland & calcification of the liver which may be caused from his previoius radiation last fall. Both of these areas will be presented again in the Tumor Board this coming Tuesasy. It will be determined what is the best overall treatment. For the neck region it will be either surgery or radiation. For the liver it may be that Vandetanib (chemo)will be the best plan. We expect a call on Wednesday with the outcome.
On the drive back home Wednesday the sun was again shinning & the roads were much improved (seeing pavement is always a good thing!) I knew there were many praying over our trip and felt peaceful. It still amazes me that we are over 6 years into this disease & so grateful that Tom is able to handle this fight. Thank you all so much for your support! On Thursday the world turned back to a winter wonderland. I have to admit that in this weather and especially during this time of year I drive differently than I did 3 years ago & it makes me really miss my brother. It's a strange feeling to know that I am at the same age he was when he lost his life, but I have learned to be grateful for his years on this earth.
Lamentations 3:32 "Although God gives him grief, yet he will show compassion too, accordding to the greatness of his lovingkindness. For he does not enjoy afflicting men and causing sorrow."
On Monday I somehow made it to work, even though every rational thought in my mind was to go back home & hybernate until April! I came home early that day & told Tom that this is the worst driving weather in about 20 years. Despite the forecast we still decided to make the trip to AA the following morning. I was supposed to work in the am and we were going to be on the road by noon. Instead we left earlier than planned and hit the frozen tundra by 10 am. It was a scary drive until about Jackson & at one point Tom said "Maybe we should have cancelled" We made it and I was glad that we did not have to leave the hospital as we were able to stay at the Med Inn (a hotel attached to the hospital) until the following day.
Tom had his scans on Tuesday and as always, he was very sick well into the night. The next mornig Tom had his blood draw & then onto the doc's to talk about the results. Tom has gained 5 pounds which is a result of him eating 3 meals a day. They are not full meals that the average person would consume, but he is eating much more than last November when he lost 30 pounds in such a short period. There was discussion about Tom's stomache issues and his loud gurgling. He has been put on a combination of meds and narcotics to see if this will help. Dr. said that it is due to his Calcitonin levels being so high. I'm not sure the number anymore & I didn't ask because I'm not sure I really want to know. His bones again are stable & head scan came back clean. However their is a "bulk" on his right carotid gland & calcification of the liver which may be caused from his previoius radiation last fall. Both of these areas will be presented again in the Tumor Board this coming Tuesasy. It will be determined what is the best overall treatment. For the neck region it will be either surgery or radiation. For the liver it may be that Vandetanib (chemo)will be the best plan. We expect a call on Wednesday with the outcome.
On the drive back home Wednesday the sun was again shinning & the roads were much improved (seeing pavement is always a good thing!) I knew there were many praying over our trip and felt peaceful. It still amazes me that we are over 6 years into this disease & so grateful that Tom is able to handle this fight. Thank you all so much for your support! On Thursday the world turned back to a winter wonderland. I have to admit that in this weather and especially during this time of year I drive differently than I did 3 years ago & it makes me really miss my brother. It's a strange feeling to know that I am at the same age he was when he lost his life, but I have learned to be grateful for his years on this earth.
Lamentations 3:32 "Although God gives him grief, yet he will show compassion too, accordding to the greatness of his lovingkindness. For he does not enjoy afflicting men and causing sorrow."
Friday, January 17, 2014
Friends
Winter sports has been a little challenging for the Andrews' family. Katie's swim season is done. There were so many snow days and then she was sick that she was not able to make up all the meets scheduled. She did not have the greatest record but I am proud that she kept going. Cody hurt his shoulder the first week of practise, but fortunately the doc did not think it was torn. So after 4 weeks of physical therapy he is back at it. He is on the JV team this year & had his first tournament last Saturday. He placed 3rd, which is impressive as 1/2 of the season has passed and this was his firt bout. Kyle finally got his wish and picked out his own little kitty that he is responsible for. We welcomed Echo into our home the week after Christmas, and he has been terrorizing us ever since. He really is a lovable kitten & purrs the minute he is picked up. However, at 5:00 am he loves to play & attacks me when I am doing my workouts. I keep threatening Kyle that Echo will end up in his bedroom if he bites my ankles one more time!
After the holidays Tom's friend took him on a little get away & they had a great time. Many of you have seen Tom's posts on Facebook and the pictures. After flying into Miami and watching the Orange Bowl, a little blue 'stang was rented the these two were like the "Boys of Summer" Yes, he loved Key West and yes he came off the plane tired & complaining about the white stuff on the ground! I've heard a couple of times that he is ready to head back right now. He stated that next year they plan to go again; and this times the wives are invited. Glad to know that he missed me a little :) While they were away I asked Tom a few times how he was doing and got the text "Wonderful" I know he appreciated all Dan did for him & the time they were able to spend together. I also know that Tom did not feel the best while there, but they made the best of their days in the sun & having fun. Tom has always talked about this friend like a brother & I have referred to him as "My other brother Dan" Thanks brother for helping Tom to have some fun memories of 2014.
Upon Tom's return he was scheduled to have his Colonoscopy. Thank you to another friend Alex for taking him & spending your day off caring for my hubby. They did a biopsy on the one polyp they found and it has come back cancer free. The specialist said that things looked clean & that he does not need this done again for another 5 years. They were also checking to see if Tom has Crohn's disease. It appears that this is not causing Tom the sharp pain & gurgling stomach. I guess that we'll have to wait until later this month to talk with his Oncologist about his continued issues. We will be spending a few day in AA as they will be doing his scans (including a head scan). Tom has had a few more episodes where the world goes black and he falls down. Last Sunday morning he laded on his bottom at the very same spot in our room where he blacked out a few months ago. However, he did not go all the way out. This has been a huge concern of mine for the past few months.
Where would we be if we did not have those that we could turn to & count on? At the start of this new year, I am aware again that we have so many friends that are willing to support us. Life is not always easy, but we are the lucky ones to have the opportunity to make these deeper connections. I hope that someday I can be the friend who is able to help another. Isn't this what our lives are to be about?
1 Thessaonians 5:11 "So encourage each other to build each other up, just as you are already doing."
After the holidays Tom's friend took him on a little get away & they had a great time. Many of you have seen Tom's posts on Facebook and the pictures. After flying into Miami and watching the Orange Bowl, a little blue 'stang was rented the these two were like the "Boys of Summer" Yes, he loved Key West and yes he came off the plane tired & complaining about the white stuff on the ground! I've heard a couple of times that he is ready to head back right now. He stated that next year they plan to go again; and this times the wives are invited. Glad to know that he missed me a little :) While they were away I asked Tom a few times how he was doing and got the text "Wonderful" I know he appreciated all Dan did for him & the time they were able to spend together. I also know that Tom did not feel the best while there, but they made the best of their days in the sun & having fun. Tom has always talked about this friend like a brother & I have referred to him as "My other brother Dan" Thanks brother for helping Tom to have some fun memories of 2014.
Upon Tom's return he was scheduled to have his Colonoscopy. Thank you to another friend Alex for taking him & spending your day off caring for my hubby. They did a biopsy on the one polyp they found and it has come back cancer free. The specialist said that things looked clean & that he does not need this done again for another 5 years. They were also checking to see if Tom has Crohn's disease. It appears that this is not causing Tom the sharp pain & gurgling stomach. I guess that we'll have to wait until later this month to talk with his Oncologist about his continued issues. We will be spending a few day in AA as they will be doing his scans (including a head scan). Tom has had a few more episodes where the world goes black and he falls down. Last Sunday morning he laded on his bottom at the very same spot in our room where he blacked out a few months ago. However, he did not go all the way out. This has been a huge concern of mine for the past few months.
Where would we be if we did not have those that we could turn to & count on? At the start of this new year, I am aware again that we have so many friends that are willing to support us. Life is not always easy, but we are the lucky ones to have the opportunity to make these deeper connections. I hope that someday I can be the friend who is able to help another. Isn't this what our lives are to be about?
1 Thessaonians 5:11 "So encourage each other to build each other up, just as you are already doing."
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