We are getting closer to our Relay for Life event in Barry County and we have a Golfing Event before that happens. Tom has been busy with the planning for this good cause. I think that he is looking forward to wrapping up this years events & focusing on feeling well for a while.
Tom got the results that his Calcitonin was up a little to 1016. It's not an alarming jump, but I would like it to be on the downward trend. Tuesday we headed to Detroit for the day. We were on the road by 7:30 am and did not return until 7:00 pm. I have to say that we had a good day together and even though it was a long trip, and we were worn down by the time we came through our door, we seemed to be in good spirits. Dr. Ali did not have anything new to report other than Tom's Potassium and Magnesium continue to be low. They are increasing his potassium and putting him on Magnesium. The doctor also gave Tom a prescription for "Magic Mouthwash" to help with his mouth sores. The next trip to D-town is for Tom's scans next month. This will be a 3 day trip and we will be taking the kids for the first time.
Tom's meddie friend has written information about MTC to help her friends and family understand what we are going trough. Kyle has put it into a link to share with everyone. It is titled MTC Information under the MTC Diagnosis & Treatment in the link section at the top right side of page. After clicking over to the link, select download and be patient it will come up. I know some of you still do not understand this rare form of cancer and hopefully this will help. When Tom read it he said to me "This is my life".
I will leave you with another of my favorite scriptures, Psalms 61:2
"For wherever I am, though far away at the ends of the earth, I will cry to you for help. When my heart is faint and over whelmed, lead me to the mighty, towering Rock of Safety."
2 comments:
Thank Kyle for us Valerie. This should make those who seem to underestimate this infirmity understand what is actually occurring in Tommy.
Dear Tom, Valerie and family:
I just found your blog and I have been captivated by your posts. You and your family (along with all of my Michigan patients) have been in my prayers since I left Michigan three years ago. Although I know you have been through so much, your faith and hope inspire me and countless others who read your blog. I will continue to keep you in my prayers and I look forward to more continued good news in the future.
With much love...your brother in Christ,
ted teknos, md
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